ArticleNPJ digital medicine2020
SMART Markers: collecting patient-generated health data as a standardized property of health information technology.
Article in NPJ digital medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Remote symptom monitoring integrated into electronic health records: A systematic review.Journal of the American Medical Informatics Association : JAMIA · 2020Pooled it
- Evaluating a web-based personalized decision report for total knee or hip replacement: Lessons learned from patients.Journal of evaluation in clinical practice · 2023Trial
- Wearable devices in atrial fibrillation: screening, monitoring, and management.Frontiers in cardiovascular medicine · 2026Review
- A standards-based approach to digital health research: implementing the people heart study.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Veteran Preferences and Willingness to Share Patient-Generated Health Data.Journal of general internal medicine · 2025Article
- A Comprehensive Investigation: Developing the Pharmaceutical Industry through Artificial Intelligence.Current drug discovery technologies · 2025Review
- New Horizons for Consumer-Mediated Health Information Exchange.Yearbook of medical informatics · 2024Review
- Seamless Integration of Computer-Adaptive Patient Reported Outcomes into an Electronic Health Record.Applied clinical informatics · 2024Article
- The role of artificial intelligence for the application of integrating electronic health records and patient-generated data in clinical decision support.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2024Article
- Exchanging Context and Provenance Based Standardized Patient Generated Health Data with an Electronic Health Record.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Integration of migrant and refugee data in health information systems in Europe: advancing evidence, policy and practice.The Lancet regional health. Europe · 2023Review
- CardinalKit: open-source standards-based, interoperable mobile development platform to help translate the promise of digital health.JAMIA open · 2023Article
- Successful Integration of EN/ISO 13606-Standardized Extracts From a Patient Mobile App Into an Electronic Health Record: Description of a Methodology.JMIR medical informatics · 2022Article
- Integrating a Patient Engagement App into an Electronic Health Record-Enabled Workflow Using Interoperability Standards.Applied clinical informatics · 2022Article
- HL7 FHIR-based tools and initiatives to support clinical research: a scoping review.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Challenges and opportunities for advancing patient-centered clinical decision support: findings from a horizon scan.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- HL7 FHIR with SNOMED-CT to Achieve Semantic and Structural Interoperability in Personal Health Data: A Proof-of-Concept Study.Sensors (Basel, Switzerland) · 2022Article
- The technical landscape for patient-centered CDS: progress, gaps, and challenges.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Evaluating a Prototype Clinical Decision Support Tool for Chronic Pain Treatment in Primary Care.Applied clinical informatics · 2022Article
- Developing a Dietary Lifestyle Ontology to Improve the Interoperability of Dietary Data: Proof-of-Concept Study.JMIR formative research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
A patient-centered health system needs precise computable measurements to derive value. While validated patient-reported outcomes (PROs) are increasingly used in trials, their adoption in care remains limited and generally separated from the medical record. Further, absence of systematic processes for patient-led data submission excludes valuable data from digital devices that can potentially aid in contextualizing health status. With prior experience in developing apps for the Patient-Reported Outcomes Measurement Information System (PROMIS), we sought to make collecting patient-generated health data (PGHD) a fundamental property of health information technology at scale, and in an interoperable, standards-compliant fashion. We build upon the open SMART on FHIR (Fast Health Interoperability Resources) specification to create SMART Markers-a mobile device software framework encapsulating functionality needed for rapid deployment of both patient- and practitioner-facing PGHD apps. We refactored previously developed PROMIS apps to use SMART Markers for handling PGHD-request creation, on-device administration, and generation of a variety of PGHD types and submission of results to a FHIR server. Validation and conformance tests were performed on the generated output and app-reusability was demonstrated across two demo servers. App developers can import SMART Markers into their existing or new apps to readily leverage an interoperable PGHD capturing functionality out of the box, without having to reinvent the wheel. Our approach enables the creation of health system integrated, context-specific experiences for both patients and practitioners.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.