Evidence map›Paper›PMID 31992269›Full record

ArticleBMC public health2020

Online self-compassion training to improve the wellbeing of youth with chronic medical conditions: protocol for a randomised control trial.

Amy Finlay-Jones, Mark Boyes, Yael Perry, Fuschia Sirois, Rachael Lee, Clare Rees

Registry-linked trialOpen access · goldAbstract readClinical Trial Protocol
In one paragraph

Article in BMC public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04809610 (Effectiveness of the Internet Attachment-Based Compassion Therapy), which is not on this map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04809610 naunknown statusnot on this mapstarted 2021, after this paper: background citation

Effectiveness of the Internet Attachment-Based Compassion Therapy (iABCT) to Improve the Quality of Life and Well-being in a Population With Chronic Medical Illness.

TypeinterventionalSponsorUniversity of ValenciaRan2021 to 2023Enrolled68ConditionsChronic Medical IllnessArmsInternet attachment-based compassion therapy (iABCT).
3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.

  1. Online self-compassion-based interventions on patient outcomes in patients with cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 2 countries.

Amy Finlay-JonesTelethon Kids Institute, PO Box 855, West Perth, Western Australia, 6872, Australia. amy.finlay-jones@telethonkids.org.au.ORCID http://orcid.org/0000-0002-1336-4001
Mark BoyesSchool of Psychology, Curtin University, GPO Box U1987, Perth, Western Australia, 6845, Australia.
Yael PerryTelethon Kids Institute, PO Box 855, West Perth, Western Australia, 6872, Australia.
Fuschia SiroisDepartment of Psychology, University of Sheffield, Cathedral Court, 1 Vicar Lane, Sheffield, S1 2LT, UK.
Rachael LeeSchool of Psychology, Curtin University, GPO Box U1987, Perth, Western Australia, 6845, Australia.
Clare ReesSchool of Psychology, Curtin University, GPO Box U1987, Perth, Western Australia, 6845, Australia.
Curtin University · AUThe Kids Research Institute Australia · AUUniversity of Sheffield · GB

Funding

Australian Rotary Health Not supplied
6 · The paper itself

Abstract

backgroundChronic medical conditions (CMCs) affect up to 35% of children and adolescents. Youth with chronic medical conditions are at an increased risk of psychological distress and reduced health-related quality of life, and report rates of mental illness up to double that of their physically healthy peers. Accessible, evidence-based interventions for young people with chronic illness are urgently required to improve their mental health and daily functioning. Self-compassion involves taking a mindful, accepting approach to difficult experiences, being aware that one is not alone in one's suffering, and being kind and understanding with oneself during challenging times. Self-compassion shares strong associations with mental health outcomes among young people and preliminary work indicates that interventions that build self-compassion have the potential to substantially improve youth mental health. Self-compassion is also associated with better physical and mental health outcomes among individuals living with CMCs. While face-to-face self-compassion training is available, there are several barriers to access for youth with CMCs. Online self-compassion training potentially offers an accessible alternative for this high-risk group.

methodsSelf-Compassion Online (SCO) is a self-compassion program that has been tested with a non-clinical adult group. For the proposed trial, a reference group of youth (16-25 years) with chronic illness reviewed the program and proposed adaptations to improve its suitability for youth with chronic illness. In alignment with the SPIRIT Checklist, this paper outlines the protocol for a CONSORT-compliant, single-blind randomised controlled trial to test the efficacy of the adapted program, relative to a waitlist control, for improving self-compassion, wellbeing, distress, emotion regulation, coping and quality of life among young Australians with CMCs. Mechanisms of action and feasibility of SCO will be analysed using quantitative data and participant interviews, respectively. Finally, cost-utility will be analysed using health-related quality of life data. DISCUSSION: The SCO program could provide a scalable solution for improving psychological outcomes and quality of life among youth with chronic illness. The proposed trial will be the first to determine its efficacy for improving these outcomes, relative to waitlist control.

trial registrationThe trial was registered on the Australian New Zealand Clinical Trials Registry on the 11th April 2019, ACTRN12619000572167. Protocol version: Version 2, 21 December 2019.

Indexed as

EmpathyInternetSelf ConceptAdolescentAdultAustraliaChronic DiseaseFemaleHealth PromotionHumansMaleMental DisordersProgram EvaluationPsychological DistressQuality of LifeRandomized Controlled Trials as TopicChronic illnessChronic medical conditionsDigital healthOnlineSelf-compassionYouth

Identifiers

PMID31992269
PMCPMC6986046
OpenAlexW3003346558

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.