ArticleBMC nephrology2020
Linking disease registries and nationwide healthcare administrative databases: the French renal epidemiology and information network (REIN) insight.
Article in BMC nephrology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.
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Who cites it
36 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Development of Indirect Health Data Linkage on Health Product Use and Care Trajectories in France: Systematic Review.Journal of medical Internet research · 2023Pooled it
- Pooled it
- A Pharmaco-Epidemiological Research Program Leveraging a Nationwide Database of Kidney Transplantation.Pharmacoepidemiology and drug safety · 2026Article
- Drug prescription before and after dialysis initiation in older patients: a nationwide study.BMC geriatrics · 2026Article
- Oral health care among dialysis patients in France and impact on survival.Journal of nephrology · 2025Article
- Walking autonomy in chronic dialysis patients: insights from a nationwide registry and focus group analysis.Clinical kidney journal · 2025Article
- High level of infection-related hospitalizations in the 2019-2020 French national dialysis cohort.Clinical kidney journal · 2025Article
- Stroke risk in ADPKD patients treated by dialysis: a retrospective study.Clinical kidney journal · 2025Article
- Article
- The diversity of peritoneal dialysis care trajectories: A study based on the REIN registry and SNDS database.PloS one · 2025Article
- Diuretics and mortality reduction in incident dialysis patients: a two-year observational study.Scientific reports · 2024Observational
- Improved outcomes with leadless vs. single-chamber transvenous pacemaker in haemodialysis patients.Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology · 2024Article
- Efficacy and safety of direct oral anticoagulants versus vitamin K antagonists in patients on chronic dialysis.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2024Article
- Pregnancy Among Women Receiving Chronic Dialysis in France (2006-2020).Kidney international reports · 2024Article
- Effect of comorbidities on healthcare expenditures for patients on kidney replacement therapy considering the treatment modality and duration in a French cohort.The European journal of health economics : HEPAC : health economics in prevention and care · 2024Article
- Examining the quality and population representativeness of linked survey and administrative data: guidance and illustration using linked 1958 National Child Development Study and Hospital Episode Statistics data.International journal of population data science · 2024Article
- Twenty years of the French Renal Epidemiology and Information Network.Clinical kidney journal · 2024Article
- Sex-related differences in pre-dialysis trajectories and dialysis initiation: A French nationwide retrospective study.PloS one · 2024Article
- Cross-validation of comorbidity items in two national databases in a sample of patients with end-stage kidney disease.BMC health services research · 2023Article
- Pre-dialysis care trajectory and post-dialysis survival and transplantation access in patients with end-stage kidney disease.Journal of nephrology · 2023Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRecord linkage is increasingly used in health research worldwide. Combining the patient information available in healthcare, administrative and clinical databases broadens the research perspectives, particularly for chronic diseases. Recent guidelines highlight the need for transparency on the used record linkage processes and the extracted data to be used by researchers.
methodsTherefore, the aim of this study was to describe the deterministic iterative approach used to link the French Epidemiology and Information Network (REIN), a French national End-Stage Renal Disease registry, with the Système National des Données de Santé (SNDS), a French nationwide medico-administrative healthcare database.
resultsAmong the 22,073 patients included in the REIN registry who started renal replacement therapy between 2014 and 2015 in France, 19,223 (87.1%) were matched with patients in the SNDS database. Comparison of matched and unmatched patients confirmed the absence of any major selection bias. Then, the record linkage was evaluated using the comorbidity status (diabetes).
conclusionsThis fast and efficient method of record linkage with pseudonymized data and without unique and direct identifier might inspire other research teams. It also opens the path for new research on chronic kidney disease.
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