Evidence map›Paper›PMID 31989097›Full record

ArticleResearch and practice in thrombosis and haemostasis2020

Patient Experience of Living With Cancer-Associated Thrombosis in Canada (PELICANADA).

Simon Noble, Annmarie Nelson, Jill Scott, Anne Berger, Karen Schmidt, Parinita Swarnkar, Agnes Lee

Open access · goldAbstract read
In one paragraph

Article in Research and practice in thrombosis and haemostasis, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
4.2field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 38 citations in OpenAlex.

  1. Quality of life in oncological patients with venous thromboembolic disease.Research and practice in thrombosis and haemostasis · 2024
    Review
  2. Article
  3. Article
  4. Review
  5. Article
  6. Review
  7. Cancer-associated venous thromboembolism.Nature reviews. Disease primers · 2022
    Review
  8. Observational
  9. Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2022
    Article
  10. Observational
  11. Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2022
    Article
  12. Review
  13. Article
  14. Article
  15. Review
  16. Patient Experience of Living With Cancer-Associated Thrombosis in Canada (PELICANADA).Research and practice in thrombosis and haemostasis · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 2 countries.

Simon NobleMarie Curie Palliative Care Research Centre Cardiff University Cardiff Wales UK.
Annmarie NelsonMarie Curie Palliative Care Research Centre Cardiff University Cardiff Wales UK.
Jill ScottDivision of Hematology University of British Columbia Vancouver BC Canada.
Anne BergerDivision of Hematology University of British Columbia Vancouver BC Canada.
Karen SchmidtDivision of Hematology University of British Columbia Vancouver BC Canada.
Parinita SwarnkarMarie Curie Palliative Care Research Centre Cardiff University Cardiff Wales UK.
Agnes LeeDivision of Hematology University of British Columbia British Columbia Cancer Agency Vancouver BC Canada.
University of British Columbia · CAMarie Curie · GBCardiff University · GB

Funding

Marie Curie MCCC-FCO-11-C
6 · The paper itself

Abstract

introductionPrevious research from the United Kingdom and Spain has identified several areas of unmet clinical and support need for cancer patients diagnosed with venous thromboembolism. It is not known whether such experiences are restricted to those countries health care systems and culture. We therefore evaluated patients' experience of cancer-associated thrombosis (CAT) within a Canadian setting.

methodsPurposive sampling of patients with CAT attending a regional thrombosis clinic in Vancouver was undertaken. Semistructured interviews were audio recorded, transcribed, and coded using NVivo software. A deductive approach was taken by applying the framework matrix from the original study to these data on a case-by-case basis.

resultsTwenty patients (10 male, 10 female) aged 39 to 74 (mean, 63) representing a breadth of different cancers participated. Commonalities between the UK and Canadian patients included the traumatic nature of experiencing CAT, the need for information, and adaptive behaviors through ritualization. Two new themes were identified: (1) Patients with incidental pulmonary emboli (iPE) were usually telephoned about their thrombus with little support and suboptimal communication; and (2) cost implications of accessing low-molecular-weight heparin varied according to insurance cover. Patients were sometimes converted to warfarin for financial reasons.

conclusionThe distress associated with CAT is a common experience across different populations but may be ameliorated by early access to specialist services, information, and support. The current process for managing iPE could be improved with better communication and a dedicated clinical pathway. Funding issues may influence choice of anticoagulant.

Indexed as

cancer‐associated thrombosisculturalpatient experiencequalitativevenous thromboembolism

Identifiers

PMID31989097
PMCPMC6971318
OpenAlexW2981531931

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.