ArticleJAMIA open2018
If you build it, they may not come: modifiable barriers to patient portal use among pre- and post-kidney transplant patients.
Article in JAMIA open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Sociodemographic and Socioeconomic Determinants for the Usage of Digital Patient Portals in Hospitals: Systematic Review and Meta-Analysis on the Digital Divide.Journal of medical Internet research · 2025Pooled it
- Quantifying Patient Portal Use: Systematic Review of Utilization Metrics.Journal of medical Internet research · 2021Pooled it
- Comparing Characteristics of Patients Who Connect Their iPhones to an Electronic Health Records System Versus Patients Who Connect Without Personal Devices: Cohort Study.Journal of medical Internet research · 2019Trial
- Assessing the Effects of eHealth Literacy and the Area Deprivation Index on Barriers to Electronic Patient Portal Use for Orthopedic Surgery: Cross-Sectional Observational Study.JMIR perioperative medicine · 2026Observational
- Digital Information Exchange Between the Public and Researchers in Health Studies: Scoping Review.Journal of medical Internet research · 2025Article
- Evaluation of Experiences and Attitudes of Patients Towards Patient Portal-Enabled Access to Their Health Information or Medical Records: A Qualitative Grounded Theory Study.Qualitative health research · 2023Article
- Post-transplant education for kidney recipients and their caregivers.Pediatric nephrology (Berlin, Germany) · 2023Review
- The Relationship Between Health Literacy and Outcomes Before and After Kidney Transplantation.Transplantation direct · 2022Article
- Patient-Level Factors Associated with Utilization of Telemedicine Services from a Free Clinic During COVID-19.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2022Article
- Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study.JMIR pediatrics and parenting · 2022Article
- Designing an App for Immunosuppression Adherence and Communication: A Qualitative Approach.Canadian journal of kidney health and disease · 2022Article
- Voicing Individual Concerns for Engagement in Hemodialysis (VOICE-HD): A Mixed Method, Randomized Pilot Trial of Digital Health in Dialysis Care Delivery.Canadian journal of kidney health and disease · 2021Article
- Patient Portal Barriers and Group Differences: Cross-Sectional National Survey Study.Journal of medical Internet research · 2020Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundPatient access to health information using electronic patient portals is increasingly common. Portal use has the potential to improve patients' engagement with their health and is particularly important for patients with chronic illness; however, patients' abilities, attitudes, and use of portals are poorly understood.
methodsA single-center, cross-sectional survey was conducted of 240 consecutive pre- and post-kidney transplant patients of all levels of technological proficiency who presented to an urban transplant center in the United States. The investigator-developed Patient Information and Technology Assessment-Patient Portal was used to assess patients' attitudes towards the use of patient portals.
resultsMost patients surveyed did not use the patient portal (
conclusionsWe identified several modifiable barriers to patient portal use. Some barriers can be addressed by patient education and training on portal use, and federal initiatives are underway to improve interoperability; however, a preference for traditional communications represents the most prominent barrier. Additional strategies are needed to improve portal adoption by encouraging acceptance of technologies as a way of clinical communication.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.