Evidence map›Paper›PMID 31980511›Full record

ArticleBMJ open2020

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis.

Serena Francesca Flocco, Rosario Caruso, Serena Barello, Tiziana Nania, Silvio Simeone, Federica Dellafiore

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
1.6field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it, 21 citations in OpenAlex.

  1. Pooled it
  2. Mental Health Experiences and Needs of Women With Congenital Heart Disease in Pregnancy and Postpartum: A Qualitative Participatory Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Reliability and validation of the German WHOQOL-BREF in adults with congenital heart disease.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  4. Article
  5. What Do Mothers Want during a High-risk Pregnancy? A Qualitative Study.International journal of community based nursing and midwifery · 2026
    Article
  6. Article
  7. Lost in the System: Responsibilisation and Burden for Women With Multiple Long-Term Health Conditions During Pregnancy.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  8. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Serena Francesca FloccoHealth Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.
Rosario CarusoHealth Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy rosario.caruso@unimi.it.ORCID 0000-0002-7736-6209
Serena BarelloDepartment of Psychology, EngageMinds HUB - Consumer & Health Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.
Tiziana NaniaHealth Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.
Silvio SimeoneDepartment of Biomedicine and Prevention, University of Rome Tor Vergata, Roma, Lazio, Italy.
Federica DellafioreHealth Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.
IRCCS Policlinico San Donato · ITUniversità Cattolica del Sacro Cuore · ITUniversity of Rome Tor Vergata · IT

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThis study explored the lived experiences of women with congenital heart disease (CHD) during pregnancy and early motherhood.

designQualitative study using semistructured interviews. Data were analysed according to interpretative phenomenological analysis.

settingSan Donato Milanese, Italy.

participants12 adult women during pregnancy or early motherhood.

resultsThree main themes emerged from the analysis that were labelled as follows: 'Being a woman with CHD'; 'Being a mother with CHD'; and 'Don't be alone'. Mothers described both positive and negative feelings about their pregnancies and transitions from childless women to mothers with CHD. They needed supportive care to improve the management of their health during pregnancy and early motherhood.

conclusionThis study explored the lived experiences of women with CHD during pregnancy and early motherhood. The emerged themes represent an initial framework for implementing theory-grounded educational and supportive strategies that improve self-care, engagement and quality of life for women with CHD. Furthermore, the study's results provide guidance for operationalising the described experiences into items and domains for future cross-national surveys.

Indexed as

Adaptation, PsychologicalPregnancy Complications, CardiovascularQualitative ResearchQuality of LifeAdultFemaleHeart Defects, CongenitalHumansIncidenceItalyMiddle AgedMother-Child RelationsMothersPregnancycardiologycongenital heart diseasequalitative research

Identifiers

PMID31980511
PMCPMC7044861
OpenAlexW3002566742

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.