ArticleBJOG : an international journal of obstetrics and gynaecology2020
Parents' experiences of care following the loss of a baby at the margins between miscarriage, stillbirth and neonatal death: a UK qualitative study.
Article in BJOG : an international journal of obstetrics and gynaecology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 3 of them syntheses that pooled it.
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Who cites it
35 citing papers in PubMed, 3 syntheses or guidelines pooled it, 117 citations in OpenAlex.
- Women's experiences with the healthcare system during and after a late miscarriage: a qualitative meta-synthesis.Frontiers in psychiatry · 2025Pooled it
- Subsequent pregnancy outcomes after second trimester miscarriage or termination for medical/fetal reason: A systematic review and meta-analysis of observational studies.Acta obstetricia et gynecologica Scandinavica · 2024Pooled it
- Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents.BMC pregnancy and childbirth · 2022Pooled it
- Experience of Pregnancy Loss Among Maternal Nurses and Midwives: A Phenomenological Study.Nursing open · 2026Article
- Grief Care Experiences of Midwives and Obstetric Nurses Following Stillbirth: A Phenomenological Study.Nursing open · 2026Article
- Updating unanswered questions for stillbirth research: refresh of the UK Stillbirth Priority Setting Partnership.Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology · 2026Article
- Registration of Stillbirth After Early Fetal Death: A National Population-Based Analysis.BJOG : an international journal of obstetrics and gynaecology · 2026Article
- Acceptable Nomenclature for Pregnancy Loss Care: A Cross-Sectional Observational Survey.BJOG : an international journal of obstetrics and gynaecology · 2026Observational
- Triage and care for women with symptoms or diagnosis of pregnancy loss between 14 + 0 and 21 + 6 weeks' gestation.International journal of gynaecology and obstetrics: the official organ of the International Federation of Gynaecology and Obstetrics · 2026Article
- Confronting death at birth: dialogues and solutions from health teachers and students.Revista da Escola de Enfermagem da U S P · 2026Article
- Cyclical grief in Israeli women after IVF and medical termination.Scientific reports · 2025Article
- Miscarriage communication in Australia: insights from women and general practice trainees.BMC pregnancy and childbirth · 2025Article
- From grief to resilience: a qualitative study of women's reactions and coping methods after perinatal loss in Türkiye.BMJ open · 2025Article
- Article
- "That Is What We Have Left of Her": The Significance of Transitional Objects After the Death of an Infant in a Norwegian Context.Qualitative health research · 2025Article
- Midwives' support for parents following stillbirth: How they practise and resources they need from a phenomenological perspective.Journal of advanced nursing · 2025Article
- Women's psychological experiences of preterm labour and birth which results in an intrapartum stillbirth or a neonatal death: an empty systematic review.Frontiers in psychiatry · 2025Review
- Lived experiences and perspectives of women who had undergone perinatal loss in Nairobi county, Kenya: a qualitative study.BMJ public health · 2024Article
- Analysis of copy number variants detected by sequencing in spontaneous abortion.Molecular cytogenetics · 2024Article
- Spiritual Support to Improve Women's Mental Health after Miscarriage and Stillbirth: A Qualitative Study in Japan.The Kobe journal of medical sciences · 2024Article
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveTo explore the healthcare experiences of parents whose baby died either before, during or shortly after birth between 20
designQualitative interview study.
settingEngland through two parent support organisations and four NHS Trusts. SAMPLE: A purposive sample of parents.
methodsThematic analysis of semi-structured in-depth narrative interviews.
main outcome measuresParents' healthcare experiences.
resultsThe key overarching theme to emerge from interviews with 38 parents was the importance of the terminology used to refer to the death of their baby. Parents who were told they were 'losing a baby' rather than 'having a miscarriage' were more prepared for the realities of labour, the birth experience and for making decisions around seeing and holding their baby. Appropriate terminology validated their loss, and impacted on parents' health and wellbeing immediately following bereavement and in the longer term.
conclusionFor parents experiencing the death of their baby at the margins between miscarriage, stillbirth and neonatal death, ensuring the use of appropriate terminology that reflects parents' preferences is vital. This helps to validate their loss and prepare them for the experiences of labour and birth. Reflecting parents' language preferences combined with compassionate bereavement care is likely to have a positive impact on parents' experiences and improve longer-term outcomes. TWEETABLE ABSTRACT: Describing baby loss shortly before 24 weeks of gestation as a 'miscarriage' does not prepare parents for labour and birth, seeing their baby and making memories.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.