SynthesisDevelopmental medicine and child neurology2020
Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties.
Synthesis in Developmental medicine and child neurology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Psychometric Evaluation of the Cross-Culturally Adapted Dutch-Language Version of the Participation and Environment Measure for Children and Youth (PEM-CY).Occupational therapy international · 2026Article
- Sport-Based Exercise in Pediatric Acquired Brain Injury: Protocol for a Randomized Controlled Trial.Journal of clinical medicine · 2025Article
- Measuring Community and Home Participation and Environmental Factors in Children with Cerebral Palsy.Pediatric reports · 2025Article
- Arabic Patient-Reported Measures of Activity and Participation for Children: A Systematic Review of Psychometric Properties.Children (Basel, Switzerland) · 2023Review
- Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation.Archives of rehabilitation research and clinical translation · 2022Article
- Capturing and Operationalizing Participation in Pediatric Re/Habilitation Research Using Artificial Intelligence: A Scoping Review.Frontiers in rehabilitation sciences · 2022Article
- Participation Restrictions among Children and Young Adults with Acquired Brain Injury in a Pediatric Outpatient Rehabilitation Cohort: The Patients' and Parents' Perspective.International journal of environmental research and public health · 2021Article
- Cross-Cultural Adaptation and Evaluation of the Participation and Environment Measure for Children and Youth to the Indian Context-A Mixed-Methods Study.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo examine which instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) align with attendance and/or involvement constructs of participation; and to systematically review measurement properties of these instruments in children with ABI or CP, to guide instrument selection.
methodFive databases were searched. Instruments that quantified 'attendance' and/or 'involvement' aspects of participation according to the family of participation-related constructs were selected. Data on measurement properties were extracted and methodological quality of the studies assessed.
resultsThirty-seven instruments were used to assess participation in children with ABI or CP. Of those, 12 measured attendance and/or involvement. The reliability, validity, and responsiveness of eight of these instruments were examined in 14 studies with children with ABI or CP. Sufficient measurement properties were reported for most of the measures, but no instrument had been assessed on all relevant properties. Moreover, most psychometric studies have marked methodological limitations.
interpretationInstruments to assess participation of children with ABI or CP should be selected carefully, as many available measures do not align with attendance and/or involvement. Evidence for measurement properties is limited, mainly caused by low methodological study quality. Future studies should follow recommended methodological guidelines. WHAT THIS PAPER ADDS: Twelve instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) aligned with attendance/involvement. Seven instruments have some psychometric evidence supporting their use with children with CP. For children with ABI, only the Child and Adolescent Scale of Participation has shown preliminary evidence of measurement properties.
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