Evidence map›Paper›PMID 31974688›Full record

ArticleJournal of patient-reported outcomes2020

A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales.

Beatrix Algurén, Michaela Coenen, Dan Malm, Bengt Fridlund, Jan Mårtensson, Kristofer Årestedt, Collaboration and Exchange in Swedish cardiovascular caring Academic Research (CESAR) group

Abstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of patient-reported outcomes, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Measurement properties of utility-based health-related quality of life measures in cardiac rehabilitation and secondary prevention programs: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Pooled it
  2. Pooled it
  3. Patient-centered care in Coronary Heart Disease: what do you want to measure? A systematic review of reviews on patient-reported outcome measures.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Pooled it
  4. European Society of Cardiology Quality Indicators for the care and outcomes of cardiac pacing: developed by the Working Group for Cardiac Pacing Quality Indicators in collaboration with the European Heart Rhythm Association of the European Society of Cardiology.Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology · 2022
    Pooled it
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  17. Patient-Reported Outcomes in Cardiovascular Trials.The Canadian journal of cardiology · 2021
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  19. Human Functioning: Developments and Grand Challenges.Frontiers in rehabilitation sciences · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Beatrix AlgurénDepartment of Food and Nutrition, and Sport Science, Faculty of Education, University of Gothenburg, PO Box 300, 405 30, Gothenburg, Sweden. Beatrix.alguren@gu.se.ORCID http://orcid.org/0000-0001-9993-8741
Michaela CoenenInstitute for Medical Information Processing, Biometry and Epidemiology (IBE), Chair of Public Health and Health Services Research, Research Unit for Biopsychosocial Health, LMU Munich, Munich, Germany.
Dan MalmDepartment of Nursing, School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Bengt FridlundCentre of Interprofessional Collaboration within Emergency care (CICE), Linnaeus University, Växjö, Sweden.
Jan MårtenssonDepartment of Nursing, School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Kristofer ÅrestedtFaculty of Health and Life Sciences, Linnaeus University, Kalmar/Växjö, Sweden.
Collaboration and Exchange in Swedish cardiovascular caring Academic Research (CESAR) group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundOver the past decade, the importance of person-centered care has led to increased interest in patient-reported outcome measures (PROMs). In cardiovascular care, selecting an appropriate PROM for clinical use or research is challenging because multimorbidity is often common in patients. The aim was therefore to provide an overview of heart-disease specific PROMs and to compare the content of those outcomes using a bio-psycho-social framework of health.

methodsA scoping review of heart disease-specific PROMs, including arrhythmia/atrial fibrillation, congenital heart disease, heart failure, ischemic heart disease, and valve diseases was conducted in PubMed (January 2018). All items contained in the disease-specific PROMs were mapped to WHO's International Classification of Functioning, Disability and Health (ICF) according to standardized linking rules.

resultsA total of 34 PROMs (heart diseases in general n = 5; cardiac arrhythmia n = 6; heart failure n = 14; ischemic heart disease n = 9) and 147 ICF categories were identified. ICF categories covered Body functions (n = 61), Activities & Participation (n = 69), and Environmental factors (n = 17). Most items were about experienced problems of Body functions and less often about patients' daily activities, and most PROMs were specifically developed for heart failure and no PROM were identified for valve disease or congenital heart disease.

conclusionsOur results motivate and provide information to develop comprehensive PROMs that consider activity and participation by patients with various types of heart disease.

Indexed as

Healthcare quality, Patient outcome assessmentHeart diseaseInternational Classification of Functioning, Disability and HealthPatient-reported outcome measuresPerson-centeredReview

Identifiers

PMID31974688
PMCPMC6977790

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.