SynthesisPalliative medicine2020
Perspectives of elders and their adult children of Black and minority ethnic heritage on end-of-life conversations: A meta-ethnography.
Synthesis in Palliative medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review.Journal of immigrant and minority health · 2022Pooled it
- Encouraging Clinical Trial Participation Through Qualitative Study and Behavior Change Methodology.Circulation. Population health and outcomes · 2026Article
- Current situation, challenges and future trends of pediatric palliative care from a multi-dimensional perspective: a narrative review.Translational pediatrics · 2026Review
- Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory.BMC palliative care · 2024Article
- Advance care planning as perceived by marginalized populations: Willing to engage and facing obstacles.PloS one · 2024Article
- "The communication I had with him back then is still stuck in my mind." Bereaved families of cancer patients' experiences for end-of-life communication.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Trust and inclusion during the Covid-19 pandemic: Perspectives from Black and South Asian people living with dementia and their carers in the UK.International journal of geriatric psychiatry · 2022Article
- Behavioral economic implementation strategies to improve serious illness communication between clinicians and high-risk patients with cancer: protocol for a cluster randomized pragmatic trial.Implementation science : IS · 2021Article
- Association Between Black Race, Clinical Severity, and Management of Acute Pulmonary Embolism: A Retrospective Cohort Study.Journal of the American Heart Association · 2021Article
- Disparities in Palliative and Hospice Care and Completion of Advance Care Planning and Directives Among Non-Hispanic Blacks: A Scoping Review of Recent Literature.The American journal of hospice & palliative care · 2021Article
- Exploration of the impact of the COVID-19 pandemic on people with dementia and carers from black and minority ethnic groups.BMJ open · 2021Article
- Rapid review of decision-making for place of care and death in older people: lessons for COVID-19.Age and ageing · 2021Review
- Disparities and Racism Experienced Among Older African Americans Nearing End of Life.Current geriatrics reports · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care.
aimTo develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approach.
designSystematic interpretive exploration using the process of meta-ethnography was utilised. DATA SOURCES: CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme.
resultsThe following four storylines were constructed: 'My family will carry out everything for me; it is trust'; 'No Mum, don't talk like that'; 'I leave it in God's hands'; and 'Who's going to look after us?' The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.