ArticleBMJ open2020
Cancer caregivers' experiences of prognosis in Australia: a qualitative interview study.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Navigating limited resources: experiences of caregivers for elderly terminal cancer patients in a region with limited palliative care services.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Improving communication skills in caregivers: an adaptation and pilot test of a brief training module for caregivers of people with cancer in Australia.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Patient-reported outcome and experience domains for diagnostic excellence: a scoping review to inform future measure development.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens.International journal of health policy and management · 2024Article
- Patient Reasoning: Patients' and Care Partners' Perceptions of Diagnostic Accuracy in Emergency Care.Medical decision making : an international journal of the Society for Medical Decision Making · 2024Article
- Hope in the era of precision oncology: a qualitative study of informal caregivers' experiences.BMJ open · 2023Article
- Patient-Caregiver Dyads' Prognostic Information Preferences and Perceptions in Advanced Cancer.Journal of pain and symptom management · 2023Article
- "We Have to Be Strong Ourselves": Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesForecasting survival in cancer is a particularly challenging facet of oncological work and can involve complex interactions with patients and their families. While there is considerable research on patient experiences of being provided with, or becoming aware of, their prognosis, there has been much less emphasis placed on the experiences of caregivers. The aim of this paper was to examine caregivers' experiences of prognosis.
designThis study used semistructured interviews; transcripts were analysed thematically using the framework approach. These data are part of a larger research project focused on experiences of cancer survivorship.
settingRecruitment was from two metropolitan hospitals in Queensland, Australia.
participants50 caregivers of patients living with cancer and receiving treatment at two metropolitan hospitals (32% male, 68% female) participated in this study.
resultsFour main themes were identified: (1) caregivers' uncertainty around the meaning and implications of prognosis, (2) caregivers' sense of exclusion in prognostic conversations, (3) the practice of situating prognosis within a context of hope and (4) the precarious balance between realism, optimism and strategic 'ignorance'.
conclusionsCaregivers are in many respects the unseen third party of prognostic communication. Developing a better understanding of caregivers' perceptions of prognosis, including how this may be challenged, accepted or otherwise, is important in engaging caregivers in the process of communicating prognostic information. Facilitating greater participation by caregivers in prognostic conversations could potentially address evident complexities and even improve the experiences of all stakeholders in cancer care settings.
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