ArticleJournal of Parkinson's disease2020
Comparison of an Online-Only Parkinson's Disease Research Cohort to Cohorts Assessed In Person.
Article in Journal of Parkinson's disease, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 28 citations in OpenAlex.
- Constipation in a Large Online Cohort of Persons with Parkinson's Disease.Movement disorders clinical practice · 2025Article
- Risk of impairment in cognitive instrumental activities of daily living for sexual and gender minority adults with reported Parkinson's disease.The Clinical neuropsychologist · 2025Article
- Using a smartphone-based self-management platform to study sex differences in Parkinson's disease: multicenter, cross-sectional pilot study.BMC medical informatics and decision making · 2024Article
- A person-centered approach to characterizing longitudinal ambulatory impairment in Parkinson's disease.Scientific reports · 2024Article
- Online cognitive testing in Parkinson's disease: advantages and challenges.Frontiers in neurology · 2024Review
- Real-World Experiences of Parkinson's Disease OFF Time and Role of Demographics.Journal of patient-centered research and reviews · 2024Article
- In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.Journal of Parkinson's disease · 2024Article
- Lifestyle factors and clinical severity of Parkinson's disease.Scientific reports · 2023Article
- Demographic Influences on the Relationship Between Fatigue and Quality of Life in Parkinson's Disease.Movement disorders clinical practice · 2022Article
- Design of a virtual longitudinal observational study in Parkinson's disease (AT-HOME PD).Annals of clinical and translational neurology · 2021Observational
- Differences in the Presentation and Progression of Parkinson's Disease by Sex.Movement disorders : official journal of the Movement Disorder Society · 2021Article
- The Experience of OFF Periods in Parkinson's Disease: Descriptions, Triggers, and Alleviating Factors.Journal of patient-centered research and reviews · 2021Article
- Video-based Parkinson's disease assessments in a nationwide cohort of Fox Insight participants.Clinical parkinsonism & related disorders · 2021Article
- Knowledge, Responsibilities, and Peer Advice From Care Partners of Patients With Parkinson Disease Psychosis.Frontiers in neurology · 2021Article
- The Most Bothersome Aspects ofMovement disorders clinical practice · 2020Article
- The Effect of the COVID-19 Pandemic on People with Parkinson's Disease.Journal of Parkinson's disease · 2020Article
- Understanding the Lexicon of Fatigue in Parkinson's Disease.Journal of Parkinson's disease · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
22 authors at 9 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOnline tools for data collection could be of value in patient-oriented research. The Fox Insight (FI) study collects data online from individuals with self-reported Parkinson's disease (PD). Comparing the FI cohort to other cohorts assessed through more traditional (in-person) observational research studies would inform the representativeness and utility of FI data.
objectiveTo compare self-reported demographic characteristics, symptoms, medical history, and PD medication use of the FI PD cohort to other recent observational research study cohorts assessed with in-person visits.
methodsThe FI PD cohort (n = 12,654) was compared to 3 other cohorts, selected based on data accessibility and breadth of assessments: Parkinson's Progression Markers Initiative (PPMI; PD n = 422), Parkinson's Disease Biomarker Program (PDBP; n = 700), and PD participants in the LRRK2 consortium without LRRK2 mutations (n = 508). Demographics, motor and non-motor assessments, and medications were compared across cohorts. Where available, identical items on surveys and assessments were compared; otherwise, expert opinion was used to determine comparable definitions for a given variable.
resultsThe proportion of females was significantly higher in FI (45.56%) compared to PPMI (34.36%) and PDBP (35.71%). The FI cohort had greater educational attainment as compared to all other cohorts. Overall, prevalence of difficulties with motor experiences of daily living and non-motor symptoms in the FI cohort was similar to other cohorts, with only a few significant differences that were generally small in magnitude. Missing data were rare for the FI cohort, except on a few variables. DISCUSSION: Patterns of responses to patient-reported assessments obtained online on the PD cohort of the FI study were similar to PD cohorts assessed in-person.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.