Evidence map›Paper›PMID 31951475›Full record

ArticleJCO clinical cancer informatics2020

Negligible Effects of the Survey Modes for Patient-Reported Outcomes: A Report From the Childhood Cancer Survivor Study.

Jin-Ah Sim, Geehong Hyun, Todd M Gibson, Yutaka Yasui, Wendy Leisenring, Melissa M Hudson, Leslie L Robison, Gregory T Armstrong, Kevin R Krull, I-Chan Huang

Open access · greenAbstract read
In one paragraph

Article in JCO clinical cancer informatics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.7field-weighted citation impact, top 30% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 2 institutions in 1 country.

Jin-Ah SimDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Geehong HyunDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Todd M GibsonDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Yutaka YasuiDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Wendy LeisenringClinical Research Division and Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA.
Melissa M HudsonDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Leslie L RobisonDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Gregory T ArmstrongDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
Kevin R KrullDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
I-Chan HuangDepartment of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, TN.
St. Jude Children's Research Hospital · USFred Hutch Cancer Center · US

Funding

Viral Vector Technology (VVTSR)P30CA021765 · NCI · ST. JUDE CHILDREN'S RESEARCH HOSPITAL · PI CHARLES ROBERTS · 1985 to 2026
$166.9M
Mach-LETSGO: Machine-LEarning of Treatment, Survey, and Genetics towards Obtaining Correct Classification of Chronic Conditions in Adult Survivors in the Childhood Cancer Survivor Study - CCSS SupplU24CA055727 · NCI · UNIVERSITY OF MINNESOTA TWIN CITIES · PI Gregory Armstrong · 1999 to 2026
$96.7M
Patient-Reported Outcomes Version of CTCAE involving Childhood Cancer SurvivorsR01CA238368 · NCI · ST. JUDE CHILDREN'S RESEARCH HOSPITAL · PI BAKER, JUSTIN N, HUANG, I-CHAN · 2019 to 2023
$3.5M
Symptom progress and adverse health outcomes in adult childhood cancer survivorsR21CA202210 · NCI · ST. JUDE CHILDREN'S RESEARCH HOSPITAL · PI HUANG, I-CHAN, KRULL, KEVIN R · 2016 to 2017
$428k
NCI NIH HHS P30 CA021765NCI NIH HHS R01 CA238368NCI NIH HHS R21 CA202210NCI NIH HHS U24 CA055727
6 · The paper itself

Abstract

purposeThis study compared the measurement properties for multiple modes of survey administration, including postal mail, telephone interview, and Web-based completion of patient-reported outcomes (PROs) among survivors of childhood cancer.

methodsThe population included 6,974 adult survivors of childhood cancer in the Childhood Cancer Survivor Study who completed the Brief Symptom Inventory-18 (BSI-18), which measured anxiety, depression, and somatization symptoms. Scale reliability, construct validity, and known-groups validity related to health status were tested for each mode of completion. The multiple indicators and multiple causes technique was used to identify differential item functioning (DIF) for the BSI-18 items that responded through a specific survey mode. The impact of the administration mode was tested by comparing differences in BSI-18 scores between the modes accounting for DIF effects.

resultsOf the respondents, 58%, 27%, and 15% completed postal mail, Web-based, and telephone surveys, respectively. Survivors who were male; had lower education, lower household income, or poorer health status; or were treated with cranial radiotherapy were more likely to complete a telephone-based survey compared with either a postal mail or Web-based survey (all

conclusionCertain survivor characteristics were associated with choosing a specific mode for PRO survey completion. However, measurement properties among these modes were equivalent, and the impact of using a specific mode on scores was minimal.

Indexed as

Patient Reported Outcome MeasuresQuality of LifeAdolescentAdultCancer SurvivorsChildChild, PreschoolHealth StatusHumansInfantInfant, NewbornMaleNeoplasmsSurveys and QuestionnairesYoung Adult

Identifiers

PMID31951475
PMCPMC6995263
OpenAlexW3000457598

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.