Evidence map›Paper›PMID 31950854›Full record

ArticleThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2020

One Multidisciplinary Cleft and Craniofacial Team's Experience in Shifting to Family-Centered Care.

Kristin D Pfeifauf, Alison K Snyder-Warwick, Sibyl Scheve, Cheryl L Grellner, Gary B Skolnick, Andrew Wilkey, Jordan Foy, Sybill D Naidoo, Kamlesh B Patel

Abstract read
In one paragraph

Article in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Food Security Impacts Health of Children With Orofacial Clefts: An 8-Year Review of the Global Burden of Disease Study.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  2. Article
  3. What Parents of Children Born with a Cleft Lip and/or Palate Want to Know About the Care for their Child.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2025
    Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Kristin D PfeifaufDivision of Plastic and Reconstructive Surgery, Department of Surgery, Washington University School of Medicine, St. Louis, MO, USA.ORCID 0000-0001-8880-2881
Alison K Snyder-WarwickDivision of Plastic and Reconstructive Surgery, Department of Surgery, Washington University School of Medicine, St. Louis, MO, USA.
Sibyl ScheveSt. Louis Children's Hospital, St. Louis, MO, USA.
Cheryl L GrellnerSt. Louis Children's Hospital, St. Louis, MO, USA.
Gary B SkolnickDivision of Plastic and Reconstructive Surgery, Department of Surgery, Washington University School of Medicine, St. Louis, MO, USA.
Andrew WilkeySt. Louis Children's Hospital, St. Louis, MO, USA.
Jordan FoySt. Louis Children's Hospital, St. Louis, MO, USA.
Sybill D NaidooDivision of Plastic and Reconstructive Surgery, Department of Surgery, Washington University School of Medicine, St. Louis, MO, USA.
Kamlesh B PatelDivision of Plastic and Reconstructive Surgery, Department of Surgery, Washington University School of Medicine, St. Louis, MO, USA.ORCID 0000-0001-7441-2102

Funding

Investigation of Terminal Schwann Cell Function in Homeostasis and InjuryK08NS096232 · NINDS · WASHINGTON UNIVERSITY · PI SNYDER-WARWICK, ALISON K · 2017 to 2020
$717k
NINDS NIH HHS K08 NS096232
6 · The paper itself

Abstract

Family-centered care is a high-priority focus area in health care and is associated with increased family satisfaction and quality of life, better health outcomes and family follow-up, decreased burden of care, and improved efficiency of resource utilization. Motivated by our aim to improve clinic efficiency and patient retention, our multidisciplinary cleft palate and craniofacial center has been undergoing a complex family-centered reorganization over the past 3 years. We seek to share our experience in hope the information will be a useful starting point to other teams in structuring their own family-centered improvements. We suggest the following stepwise method to achieve a more family-centered process: (1) gathering preintervention data, (2) brainstorming challenges with stakeholders, (3) brainstorming solutions with stakeholders, (4) implementation, (5) follow-up and troubleshooting, (6) further implementation, and (7) gathering postintervention data. Additionally, we found the use of institutional resources added substantial value to our efforts.

Indexed as

Cleft PalateQuality of LifeHumansPatient Care TeamPatient-Centered Carefamily-centeredmultidisciplinaryquality improvement

Identifiers

PMID31950854
PMCPMC7299812

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.