Evidence map›Paper›PMID 31949006›Full record

ArticleBMJ quality & safety2020

How can patient-held lists of medication enhance patient safety? A mixed-methods study with a focus on user experience.

Sara Garfield, Dominic Furniss, Fran Husson, Mike Etkind, Marney Williams, John Norton, Della Ogunleye, Barry Jubraj, Hanaa Lakhdari, Bryony Dean Franklin

Registry-linked trialAbstract read
In one paragraph

Article in BMJ quality & safety, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06986863 (Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD), which is not on this map. Cited by 21 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06986863 narecruitingnot on this mapstarted 2025, after this paper: background citation

Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD

TypeinterventionalSponsorNorthwell HealthRan2025 to 2027Enrolled1,500ConditionsIntellectual and Developmental DisabilitiesArmsAlways Uniquely Me mobile phone application
3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Do patient engagement interventions work for all patients? A systematic review and realist synthesis of interventions to enhance patient safety.Health expectations : an international journal of public participation in health care and health policy · 2021
    Pooled it
  3. Trial
  4. Article
  5. Article
  6. A Quantitative Study Exploring and Comparing Key Factors in Medication Management in the Irish Healthcare Setting.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Patients', carers' and healthcare providers' views of patient-held health records in Kerala, India: A qualitative exploratory study.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  12. Article
  13. Review
  14. Creating opportunities for patient participation in managing medications across transitions of care through formal and informal modes of communication.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  15. The Impact of Patient Access to Their Electronic Health Record on Medication Management Safety: A Narrative Review.Saudi pharmaceutical journal : SPJ : the official publication of the Saudi Pharmaceutical Society · 2022
    Review
  16. Article
  17. Article
  18. Article
  19. Article
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Sara GarfieldPharmacy department, Imperial College Healthcare NHS Trust, London, UK sara.garfield@nhs.net.ORCID 0000-0002-9980-0520
Dominic FurnissUCLIC, UCL, London, UK.
Fran HussonPharmacy department, Imperial College Healthcare NHS Trust, London, UK.
Mike EtkindDepartment of Practice and Policy, UCL School of Pharmacy, London, UK.
Marney WilliamsPharmacy department, Imperial College Healthcare NHS Trust, London, UK.
John NortonPatient Safety Translational Research Centre, Imperial College London, London, UK.
Della OgunleyeDepartment of Practice and Policy, UCL School of Pharmacy, London, UK.
Barry JubrajNIHR CLAHRC, London, UK.
Hanaa LakhdariDepartment of Practice and Policy, UCL School of Pharmacy, London, UK.
Bryony Dean FranklinPharmacy department, Imperial College Healthcare NHS Trust, London, UK.ORCID 0000-0002-2892-1245

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatients often carry medication lists to mitigate information loss across healthcare settings. We aimed to identify mechanisms by which these lists could be used to support safety, key supporting features, and barriers and facilitators to their use.

methodsWe used a mixed-methods design comprising two focus groups with patients and carers, 16 semistructured interviews with healthcare professionals, 60 semistructured interviews with people carrying medication lists, a quantitative features analysis of tools available for patients to record their medicines and usability testing of four tools. Findings were triangulated using thematic analysis. Distributed cognition for teamwork models were used as sensitising concepts.

resultsWe identified a wide range of mechanisms through which carrying medication lists can improve medication safety. These included improving the accuracy of medicines reconciliation, allowing identification of potential drug interactions, facilitating communication about medicines, acting as an aide-mémoire to patients during appointments, allowing patients to check their medicines for errors and reminding patients to take and reorder their medicines. Different tools for recording medicines met different needs. Of 103 tools examined, none met the core needs of all users. A key barrier to use was lack of awareness by patients and carers that healthcare information systems can be fragmented, a key facilitator was encouragement from healthcare professionals.

conclusionOur findings suggest that patients and healthcare professionals perceive patient-held medication lists to have a wide variety of benefits. Interventions are needed to raise awareness of the potential role of these lists in enhancing patient safety. Such interventions should empower patients and carers to identify a method that suits them best from a range of options and avoid a 'one size fits all' approach.

Indexed as

Health PersonnelPatient SafetyCaregiversCommunicationFocus GroupsHumanspatient activationpatient-held medication recordspatient safetytransitions of care

Identifiers

PMID31949006
PMCPMC7467504

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.