ArticleClinical medicine (London, England)2020
Facilitating transition of young people with long-term health conditions from children's to adults' healthcare services - implications of a 5-year research programme.
Article in Clinical medicine (London, England), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 52 citations in OpenAlex.
- Assessing the feasibility of an intervention for adolescents and parents transitioning out of paediatric eating disorder services: A mixed methods study.European eating disorders review : the journal of the Eating Disorders Association · 2025Trial
- A pioneering transition program for adults with phenylketonuria - initial findings from a single-center one-year experience from Poland.Clinics (Sao Paulo, Brazil) · 2026Article
- The role of general practitioners in transitioning adolescents with chronic conditions to adult health care.European journal of pediatrics · 2025Article
- Assessing the Impact of Psychiatric Deinstitutionalization and Substance Use on Patient Outcomes: A Multi-Faceted Analysis.Healthcare (Basel, Switzerland) · 2025Article
- Update on Physical, Psychological, and Quality of Life Management in Klinefelter Syndrome.The Journal of clinical endocrinology and metabolism · 2025Review
- The Impact of Perceived Self-Efficacy on Healthcare Transition Outcomes: Perceptions From Parents and Young People.Child: care, health and development · 2025Article
- Transition and Life-Long Care for Adults With Cerebral Palsy: A Patient Group 'Too Hard to Impact!' Are We Still Sending Young People 'Off a Cliff'?Journal of evaluation in clinical practice · 2025Article
- Self-perceived importance and confidence of adolescents transitioning to adult care.Health care transitions · 2025Article
- Optimising healthcare transition of adolescents and young adults to adult care: a perspective statement of the Italian Society of Obesity.Eating and weight disorders : EWD · 2024Article
- Experience of pediatric to adult transition in immunology services: patient experience questionnaire and micro-costing analysis.Frontiers in immunology · 2024Article
- Factors Influencing Participation in Physical Activity, Sports, and Exercise in Children and Adolescents with Spinal Pain or Spinal Conditions: A Systematic Review and Meta-Ethnography.Behavioral sciences (Basel, Switzerland) · 2023Review
- Supporting the parent-to-child transfer of self-management responsibility for chronic kidney disease: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study.Developmental medicine and child neurology · 2023Article
- Young persons and healthcare professionals experience of virtual gastroenterology consultations: a multicentre survey conducted during the COVID-19 pandemic.Frontline gastroenterology · 2023Article
- Shifting responsibilities: A qualitative study of how young people assume responsibility from their parents for self-management of their chronic kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Moving through adulthood: The lived experience of Irish adults with PKU.Frontiers in psychology · 2022Article
- Adherence to r-hGH Therapy in Pediatric Growth Hormone Deficiency: Current Perspectives on How Patient-Generated Data Will Transform r-hGH Treatment Towards Integrated Care.Patient preference and adherence · 2022Review
- Implementing a Transition Program from Paediatric to Adult Services in Phenylketonuria: Results After Two Years of Follow-Up with an Adult Team.Nutrients · 2021Observational
- Systematic Monitoring of Cognition for Adults With Cerebral Palsy-The Rationale Behind the Development of the CPFrontiers in neurology · 2021Article
- Transition from child to adult health services for young people with cerebral palsy in Ireland: a mixed-methods study protocol.BMJ open · 2020Article
Corrections and comments
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Authors and funding
14 authors at 6 institutions in 1 country.
Funding
Abstract
backgroundDuring transition from children's to adults' healthcare, young adults with long-term conditions may show delays in psychosocial development compared to their peers without long-term conditions, and deterioration of their conditions' medical control.
methodsThis paper integrates the findings, already published in 10 separate papers, of a 5-year transition research programme. IMPLICATIONS: There is an important role for funders (commissioners) of adults' services to fund transitional healthcare, in addition to funders of children's services who currently take responsibility.It is important that healthcare provider organisations adopt an organisation-wide approach to implementation to ensure that good practice is adopted in children's and adults' services, not just adopted by enthusiasts in some specialties. This includes provision of 'developmentally appropriate healthcare' which recognises the changing biopsychosocial developmental needs of young people.Three features of transitional healthcare were associated with improved outcomes: appropriate parent involvement, promotion of young people's confidence in managing their health and meeting the adult team before transfer. These should be maintained or introduced as a priority.Child and adult healthcare providers should routinely explore with a young person how they approach transition and personalise their clinical approach thereafter.These implications are relevant for a range of stakeholders, including funders of transitional healthcare, organisations providing transitional healthcare and clinical practitioners.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.