Evidence map›Paper›PMID 31938941›Full record

ArticleJournal of patient-reported outcomes2020

Implementation of a Patient Reported Experience Measure in a Dutch disability care organisation: a qualitative study.

Marjolein van Rooijen, Stephanie Lenzen, Ruth Dalemans, Albine Moser, Anna Beurskens

Abstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Implementation of a patient-reported experience measure in a Dutch disability care organization: A process evaluation of cocreated tailored strategies.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  3. Review
  4. A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
    Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Marjolein van RooijenDepartment of Family Medicine, CAPHRI School for Public Health and Primary Care, Maastricht University, P. Debyeplein 1, 6229 HA, Maastricht, Netherlands. marjolein.vanrooijen@maastrichtuniversity.nl.ORCID http://orcid.org/0000-0003-0322-1979
Stephanie LenzenResearch Centre for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, Netherlands.
Ruth DalemansResearch Centre for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, Netherlands.
Albine MoserDepartment of Family Medicine, CAPHRI School for Public Health and Primary Care, Maastricht University, P. Debyeplein 1, 6229 HA, Maastricht, Netherlands.
Anna BeurskensDepartment of Family Medicine, CAPHRI School for Public Health and Primary Care, Maastricht University, P. Debyeplein 1, 6229 HA, Maastricht, Netherlands.

Funding

LIME -
6 · The paper itself

Abstract

backgroundPatient Reported Experience Measures are promoted to be used as an integrated measurement approach in which outcomes are used to improve individual care (micro level), organisational quality (meso level) and external justification (macro level). However, a deeper understanding of implementation issues of these measures is necessary. The narrative Patient Reported Experience Measure "Dit vind ik ervan!" (English "How I feel about it!") is used in the Dutch disability care sector, but insight into its' current use is lacking. We aimed to provide insight into experiences with the implementation and current ways of working with "Dit vind ik ervan!" as an integrated measurement strategy. A descriptive qualitative study was done at a disability care organisation. Data were collected by nine documentations, seven observations, 11 interviews and three focus groups. We applied deductive content analysis using the Consolidated Framework for Implementation Research as a framework.

resultsOur analysis revealed facilitators and barriers for the implementation of "Dit vind ik ervan!". We found most barriers at the micro level. Professionals and clients appreciated the measure's narrative approach, but struggled to perform it with communication vulnerable clients. Some clients, professionals and team leaders were unfamiliar with the measure's aim and benefit. On the meso level, implementation was done top-down, and the management's vision using the measure as an integrated measurement approach was insufficiently shared throughout the organisation.

conclusionsOur study shows that Patient Reported Experience Measures have the potential to be used as an integrated measurement strategy. Yet, we found barriers at the micro level, which might have influenced using the measurement outcomes at the meso and macro level. Tailored implementation strategies, mostly focusing on designing and preparing the implementation on the micro level, need to be developed in co-creation with all stakeholders.

Indexed as

Communication vulnerableConsolidated framework for implementation researchIntegrated measurementIntellectual disabilitiesPatient reported experience measureQuality of care

Identifiers

PMID31938941
PMCPMC6960272

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.