Evidence map›Paper›PMID 31937195›Full record

ArticleJournal of the American Heart Association2020

Provider Perspectives on the Feasibility and Utility of Routine Patient-Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis.

Peter Wohlfahrt, Susan L Zickmund, Stacey Slager, Larry A Allen, Jose Nativi Nicolau, Abdallah G Kfoury, G Michael Felker, Jorge Conte, Kelsey Flint, Adam D DeVore and 4 more

Open access · goldAbstract readMulticenter Study
In one paragraph

Article in Journal of the American Heart Association, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed
4.2field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 43 citations in OpenAlex.

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  9. Efficient measurement of multiple ventricular assist device patient-reported outcomes: Creation of a 20-item profile from the MCS A-QOL study.The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation · 2024
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  11. Clinic-based perspectives on the integration of patient-reported outcomes (PROs) in a tertiary cancer center.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
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  17. Moving towards patient-reported outcomes in routine clinical practice: implementation lessons from the BREAST-Q.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 4 institutions in 1 country.

Peter WohlfahrtUniversity of Utah School of Medicine Salt Lake City UT.
Susan L ZickmundUniversity of Utah School of Medicine Salt Lake City UT.
Stacey SlagerUniversity of Utah School of Medicine Salt Lake City UT.
Larry A AllenUniversity of Colorado Anschutz Medical Campus Aurora CO.
Jose Nativi NicolauUniversity of Utah School of Medicine Salt Lake City UT.
Abdallah G KfouryIntermountain Medical Center Murray UT.
G Michael FelkerDivision of Cardiology Duke University Medical Center Durham NC.
Jorge ConteUniversity of Utah School of Medicine Salt Lake City UT.
Kelsey FlintUniversity of Colorado Anschutz Medical Campus Aurora CO.
Adam D DeVoreDivision of Cardiology Duke University Medical Center Durham NC.
Craig H SelzmanUniversity of Utah School of Medicine Salt Lake City UT.
Rachel HessUniversity of Utah School of Medicine Salt Lake City UT.
John A SpertusLuke's Mid America Heart Institute Kansas City MO.
Josef StehlikUniversity of Utah School of Medicine Salt Lake City UT.
University of Utah · USDuke Medical Center · USUniversity of Colorado Anschutz Medical Campus · USIntermountain Medical Center · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background Patient-reported outcomes (PROs) objectively measure health-related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient-friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qualitative study of diverse providers to describe the barriers and facilitators of routine PRO use in heart failure clinics. Methods and Results Sixty heart failure providers from 5 institutions participated in 8 focus groups to explore provider perspectives on the use of heart failure-specific and generic PROs in clinical practice. A qualitative editing approach was used to analyze the data, whereby a coding dictionary was iteratively developed and applied using the qualitative software program Altas.ti. Three main themes, supporting and impeding PRO use, emerged: (1) data collection; (2) presentation and interpretation; and (3) utility and value. For each construct, we identified perspectives that highlighted both barriers and facilitators. Providers identified burden, survey fatigue, and language/health literacy barriers as potentially impeding data collection. Optimal workflow, PRO frequency and length, use of PRO translations, and assistance of a patient's proxy were suggested as facilitators. Focus group discussions provided insight on how to display PROs to support its interpretability and sharing. Furthermore, the need to educate providers on the utility and value PROs over and above current clinical approaches emerged. Conclusions Overcoming the barriers and supporting facilitators of PRO adoption could potentially lead to more successful adoption of PROs in heart failure clinics.

Indexed as

Attitude of Health PersonnelHealth Knowledge, Attitudes, PracticeHealth Status IndicatorsPatient Reported Outcome MeasuresQuality of LifeFeasibility StudiesFocus GroupsHealth StatusHeart FailureHumansPrognosisQualitative ResearchUnited Statespatient reported outcomequalitative researchquality of life

Identifiers

PMID31937195
PMCPMC7033831
OpenAlexW2999791525

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.