ArticlePloS one2020
Validity of the French version of the Autonomy Preference Index and its adaptation for patients with advanced cancer.
Article in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 14 citations in OpenAlex.
- Patient-Centred Preferences for Autonomy and Information-Seeking Among Periodontal Patients in Dental Decision Making.Journal of clinical periodontology · 2025Article
- The Chinese version of the autonomy preference index for advanced cancer patients: a study on cultural adaptation based on cognitive interview.BMC psychology · 2025Article
- Is shared decision making an aspect of palliative care integration? An observation of collaboration between oncologists and palliative care professionals.BMC palliative care · 2024Observational
- The effect of social care nurses on health related quality of life in patients with advanced cancer: A non-randomized, multicenter, controlled trial.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Patients' preferences in therapeutic decision-making in digestive oncology: a single centre cross-sectional observational study.Scientific reports · 2023Observational
- Article
- From the challenge of assessing autonomy to the instruments used in practice: A scoping review.Porto biomedical journalArticle
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWhile patient-centered care is recommended as a key dimension for quality improvement, in case of serious illness, patients may have different expectations regarding information and participation in medical decision-making. In oncology, anticipation of disease worsening remains difficult, especially when patient's preferences towards prognosis medical information are unclear. Valid tools to explore patients' preferences could help targeting end-of-life discussions, which have been shown to decrease aggressiveness of end-of-life care. Our aim was to establish the validity and reliability of the French version of the Autonomy Preference Index (API) among patients with incurable cancer and in primary care setting. Three supplementary items were specifically developed to evaluate preparedness to anticipate disease deterioration among patients with incurable cancer.
methodsThe psychometric properties of the API translated into French were assessed among patients consecutively recruited from January to March 2017 in the waiting rooms of 19 general practitioners (N = 391) and in an oncology (N = 187) clinic in Paris. Relationships between the newly-developed items and the API subscale scores were studied.
resultsA three correlated factors confirmatory model (two factors related to decision-making and a factor related to information-seeking preferences) showed an acceptable fit on the whole sample and no measurement invariance issue was found across settings, age, sex and educational level. Internal consistency and test-retest reliability were acceptable for the information-seeking and decision-making subscales. One of the newly-developed items on patients' ability to anticipate a decision on the use of artificial respiration if a sudden deterioration of their illness occurred was not related to the API subscale scores.
conclusionThe French version of the API was found valid and reliable for use in general practice and oncology settings. The additional items on patient preparedness to anticipate disease deterioration can be of interest to ensure that patient values guide all end-of-life clinical decisions.
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