ArticleHealth informatics journal2020
Mental health professional perspectives on health data sharing: Mixed methods study.
Article in Health informatics journal, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- State of the art and a mixed-method personalized approach to assess patient perceptions on medical record sharing and sensitivity.Journal of biomedical informatics · 2020Pooled it
- Perspectives on Health Data Sharing Among Patients With Somatic and Mental Health Diseases: Focus Group Study.Journal of medical Internet research · 2026Article
- Advancing Health Equity Through Substance Use Medical Record Data Sharing: Insights from Healthcare Providers.International journal of environmental research and public health · 2025Article
- Collection and sharing of health information in mental health and related systems in Australia: perspectives of people who access mental health services.BMC psychiatry · 2024Article
- Preferences for onward health data use in the electronic age among maternity patients and providers in South Africa: a qualitative study.Sexual and reproductive health matters · 2023Article
- Electronic health records identify timely trends in childhood mental health conditions.Child and adolescent psychiatry and mental health · 2023Article
- MentalHealthAI: Utilizing Personal Health Device Data to Optimize Psychiatry Treatment.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Article
- Impact of Electronic Health Records on Information Practices in Mental Health Contexts: Scoping Review.Journal of medical Internet research · 2022Article
- Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1): Focus Group Study.JMIR mental health · 2022Article
- Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 2): Focus Group Study.JMIR mental health · 2022Article
- Perceptions and Concerns of SUD Treatment Organizations Regarding the CARES Act's Alterations to Patient Confidentiality Regulations.Perspectives in health information managemen · 2022Article
- Mental health professionals' perceptions on patients control of data sharing.Health informatics journal · 2020Article
- A pilot comparison of medical records sensitivity perspectives of patients with behavioral health conditions and healthcare providers.Health informatics journalArticle
- My data choices: Pilot evaluation of patient-controlled medical record sharing technology.Health informatics journalArticle
- Physicians differ in their perceptions of sensitive medical records: Survey and interview study.Health informatics journalArticle
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
This study explores behavioral health professionals' perceptions of granular data. Semi-structured in-person interviews of 20 health professionals were conducted at two different sites. Qualitative and quantitative analysis was performed. While most health professionals agreed that patients should control who accesses their personal medical record (70%), there are certain types of health information that should never be restricted (65%). Emergent themes, including perceived reasons that patients might share or withhold certain types of health information (65%), care coordination (12%), patient comprehension (11%), stigma (5%), trust (3%), sociocultural understanding (3%), and dissatisfaction with consent processes (1%), are explored. The impact of care role (prescriber or non-prescriber) on data-sharing perception is explored as well. This study informs the discussion on developing technology that helps balance provider and patient data-sharing and access needs.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.