Evidence map›Paper›PMID 31922060›Full record

ArticleKidney international reports2020

The Relationship of Disease-Specific Knowledge and Health Literacy With the Uptake of Self-Care Behaviors in CKD.

Sarah J Schrauben, Kerri L Cavanaugh, Angela Fagerlin, T Alp Ikizler, Ana C Ricardo, Nwamaka D Eneanya, Julie Wright Nunes

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Kidney international reports, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
30citing papers in PubMed, 5 pooled it
9.6field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

30 citing papers in PubMed, 5 syntheses or guidelines pooled it, 66 citations in OpenAlex.

  1. Pooled it
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  3. The Effect of Health Literacy Interventions on Self-management in Chronic Diseases: A Systematic Review.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2025
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  12. Weight Management Experiences Among People With CKD: A Qualitative Study.Canadian journal of kidney health and disease · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 1 country.

Sarah J SchraubenDivision of Nephrology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Kerri L CavanaughDivision of Nephrology and Hypertension, Vanderbilt University Medical Center, Nashville, Tennessee, USA.
Angela FagerlinDepartment of Population Health Sciences, University of Utah, Salt Lake City, Utah, USA.
T Alp IkizlerDivision of Nephrology and Hypertension, Vanderbilt University Medical Center, Nashville, Tennessee, USA.
Ana C RicardoDivision of Nephrology, University of Illinois, Chicago, Illinois, USA.
Nwamaka D EneanyaDivision of Nephrology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Julie Wright NunesDivision of Nephrology, University of Michigan Medical School, Ann Arbor, Michigan, USA.
University of Pennsylvania · USVanderbilt University Medical Center · USUniversity of Illinois Chicago · USUniversity of Michigan · USUniversity of Utah · US

Funding

Improving Outcomes in Kidney Disease Using Systems-Driven Education and CoachingR01DK115844 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI WRIGHT, JULIE ANNE · 2018 to 2022
$2.9M
Determining Key Organizational Health Communication Practices in Complex PatientsR01DK103935 · NIDDK · VANDERBILT UNIVERSITY MEDICAL CENTER · PI CAVANAUGH, KERRI · 2015 to 2019
$2.0M
A Mixed Methods Study of Chronic Kidney Disease (CKD) Self-ManagementK23DK118198 · NIDDK · UNIVERSITY OF PENNSYLVANIA · PI SCHRAUBEN, SARAH JEANNE · 2019 to 2023
$1.0M
Non-Traditional Patient Characteristics and Attainment of Self-Care Goals in CKDK23DK097183 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI WRIGHT, JULIE ANNE · 2013 to 2017
$925k
Addressing Literacy and Numeracy in Self-care & Clinical Outcomes in ESRDK23DK080952 · NIDDK · VANDERBILT UNIVERSITY · PI CAVANAUGH, KERRI · 2008 to 2012
$915k
Integrating Conservative Kidney Management Options and Advance Care Planning Into a Pre-Dialysis Educational ProgramK23DK114526 · NIDDK · UNIVERSITY OF PENNSYLVANIA · PI ENEANYA, NWAMAKA · 2017 to 2021
$819k
Self-Management in Chronic Kidney DiseaseF32DK113681 · NIDDK · UNIVERSITY OF PENNSYLVANIA · PI SCHRAUBEN, SARAH JEANNE · 2017 to 2017
$70k
NIDDK NIH HHS F32 DK113681NIDDK NIH HHS K23 DK080952NIDDK NIH HHS K23 DK097183NIDDK NIH HHS K23 DK114526NIDDK NIH HHS K23 DK118198NIDDK NIH HHS L30 DK110819NIDDK NIH HHS R01 DK103935NIDDK NIH HHS R01 DK115844
6 · The paper itself

Abstract

introductionIndividuals with chronic kidney disease (CKD) generally have poor participation in self-care. We hypothesized that greater kidney disease knowledge and health literacy would associate with better self-care.

methodsWe enrolled 401 participants with non-dialysis-dependent CKD from one academic center in this cross-sectional study. Validated surveys were used to assess health literacy level (inadequate vs. adequate; Rapid Estimate of Adult Literacy in Medicine), perceived kidney disease knowledge (Perceived Kidney Disease Knowledge Survey [PiKS]), objective kidney disease knowledge (Kidney Disease Knowledge Survey [KiKS]), and a CKD self-care measure was constructed as the sum of self-reported self-care behaviors using the adapted Summary of Diabetes Self-Care Activities Assessment. The association between health literacy level, PiKS scores, KiKS scores, and the CKD self-care measure was assessed with multivariable adjusted linear regression models.

resultsParticipants had a mean age of 57 years and 17.7% had inadequate health literacy. PiKS scores were positively associated with the CKD self-care measure (β = 1.05, 95% confidence interval [CI] 0.50-1.63), and a positive trend was observed for KiKS scores and the CKD self-care measure (β = 0.30, 95% CI: -0.12 to 0.72). Health literacy was not associated with CKD self-care measure.

conclusionObjective kidney disease knowledge is likely necessary, but not sufficient for self-care and may depend on the level of health literacy. Perceived kidney knowledge may offer a novel target to assess patients at risk for poor self-care, and be used in targeted educational interventions.

Indexed as

health literacykidney disease knowledgeperceived kidney disease knowledgeself-careself-efficacyself-management

Identifiers

PMID31922060
PMCPMC6943760
OpenAlexW2980823267

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.