Evidence map›Paper›PMID 31919602›Full record

ArticleJournal of patient-reported outcomes2020

Patient-reported outcome measures in the interaction between patient and clinician - a multi-perspective qualitative study.

Caroline Trillingsgaard Mejdahl, Liv Marit Valen Schougaard, Niels Henrik Hjollund, Erik Riiskjær, Kirsten Lomborg

Open access · goldAbstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed
9.7field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 55 citations in OpenAlex.

  1. Multinational stakeholder engagement to inform future development and refinement of the EuroQol toddler and infant populations (EQ-TIPS).The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
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  4. Patients' experiences of responding to a Patient-Reported Outcome Measure for palliative care: a mixed method study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
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  6. Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Caroline Trillingsgaard MejdahlAmbuFlex/WestChronic, Occupational Medicine, University Research Clinic, Aarhus University, Herning, Gl Landevej 61, DK-7400, Herning, Denmark. carmej@rm.dk.ORCID http://orcid.org/0000-0001-7361-6082
Liv Marit Valen SchougaardAmbuFlex/WestChronic, Occupational Medicine, University Research Clinic, Aarhus University, Herning, Gl Landevej 61, DK-7400, Herning, Denmark.
Niels Henrik HjollundAmbuFlex/WestChronic, Occupational Medicine, University Research Clinic, Aarhus University, Herning, Gl Landevej 61, DK-7400, Herning, Denmark.
Erik RiiskjærDEFACTUM, Social & Health Services and Labour Market, Olof Palmes Allé 15, DK-8200, Aarhus, Central Denmark Region, Denmark.
Kirsten LomborgThe Research Centre for Patient Involvement, Aarhus University & the Central Denmark Region, Palle Juul-Jensens Boulevard 99, DK-8200, Aarhus, Denmark.
Aarhus University · DKCentral Denmark Region · DK

Funding

Novo Nordisk Fonden NNF16OC0022122
6 · The paper itself

Abstract

backgroundThis article addresses patient-reported outcome (PRO)-based follow-up used as a substitute for regularly scheduled follow-ups. In PRO-based follow-up, patients' PRO data filled in by the patients at home are used by clinicians as a decision aid to identify those who need clinical attention based on an automated PRO algorithm, clinical attention being either a phone call or a physical consultation. A physical consultation in the outpatient clinic prompted by the patient's PRO is termed a "PRO consultation." In this multi-perspective qualitative study, we explored the influence of patients' self-reported data on patient-clinician interaction during PRO consultations in epilepsy outpatient clinics. Interpretive description was the methodological approach, applying data from participant observations, informal interviews with clinicians, and semi-structured interviews with clinicians and patients.

resultsWe found that application and deliberate use of patients' PRO measures can affect patient-clinician interaction, promoting patient involvement in terms of improved communication and increased patient activation. These findings reflect the general patterns that have been reported in the literature. In addition, we found that PRO measures also may induce unmet expectations among some patients that can have a negative effect on patients' experiences of the interaction and their follow-up experience in general. We extracted two thematic patterns that represent PRO measures' potential for patient involvement in the patient-clinician interaction. The first pattern represents enablers, and the second pattern represents barriers for PRO measures to affect patient involvement.

conclusionsApplying PRO measures in clinical practice does not automatically enhance the patient-clinician interaction. To strengthen the benefits of PRO measures, the following supplementary clinical initiatives are suggested: summarizing and reporting the PRO measures back to the patient, considering carefully which PRO measures to include, training clinicians and assuring that the patients' introduction to PRO-based follow-up clarifies expectations.

Indexed as

CommunicationInterpretive descriptionOutpatient follow-upPatient-clinician interactionPatient-reported outcome (PRO) measuresQualitative research

Identifiers

PMID31919602
PMCPMC6952477
OpenAlexW2999467870

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.