Evidence map›Paper›PMID 31912744›Full record

ArticleHealth informatics journal2020

Mental health professionals' perceptions on patients control of data sharing.

Julia Ivanova, Adela Grando, Anita Murcko, Michael Saks, Mary Jo Whitfield, Christy Dye, Darwyn Chern

Abstract read
In one paragraph

Article in Health informatics journal, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. MentalHealthAI: Utilizing Personal Health Device Data to Optimize Psychiatry Treatment.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023
    Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Julia IvanovaArizona State University, USA.ORCID 0000-0002-5852-200X
Adela GrandoArizona State University, USA.ORCID 0000-0002-5769-8556
Anita MurckoArizona State University, USA.
Michael SaksArizona State University, USA.
Mary Jo WhitfieldJewish Family & Children's Service, USA.
Christy DyePartners in Recovery, USA.
Darwyn ChernPartners in Recovery, USA.

Funding

My Data Choices, evaluation of effective consent strategies for patients with behavioral health conditionsR01MH108992 · NIMH · ARIZONA STATE UNIVERSITY-TEMPE CAMPUS · PI GRANDO, MARIA ADELA · 2016 to 2020
$2.0M
NIMH NIH HHS R01 MH108992
6 · The paper itself

Abstract

Integrated mental and physical care environments require data sharing, but little is known about health professionals' perceptions of patient-controlled health data sharing. We describe mental health professionals' views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals' views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals' roles and scope of practice.

Indexed as

Information DisseminationMental HealthAttitude of Health PersonnelHealth PersonnelHumansPerceptiondata privacydata sharingelectronic medical recordsinterviewmental healththematic analysis

Identifiers

PMID31912744
PMCPMC9310561

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.