ArticleBMJ open2020
Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Outcomes of transitional care programs on adolescent chronic inflammatory systemic diseases: systematic review and meta-analyses.Pediatric rheumatology online journal · 2022Pooled it
- Transitional urology: a comprehensive review of the transitional care process.Nature reviews. Urology · 2026Review
- Optimising multidisciplinary team care in paediatric inflammatory bowel disease: a healthcare improvement initiative from a dedicated referral centre.BMJ open quality · 2026Article
- Design and rationale for Exploring Predictors of successful healthCare Transition for adolescents with chronic conditions in a longitudinal explorative cohort.Health care transitions · 2026Article
- Transition and clinical outcomes among AYA with sickle cell disease.Health care transitions · 2026Article
- Feasibility of transition research in pituitary disease using patient registries: a EuRREB secondary survey.Endocrine connections · 2025Article
- Models of outpatient care delivery in inflammatory bowel disease: a scoping review.Journal of the Canadian Association of Gastroenterology · 2025Article
- [Transition in gastroenterology and hepatology].Innere Medizin (Heidelberg, Germany) · 2025Review
- Effectiveness of Transitional Care in Inflammatory Bowel Disease; Development, Validation, and Initial Outcomes of a Transition Success Score.Journal of Crohn's & colitis · 2025Article
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- Transition is associated with lower disease activity, fewer relapses, better medication adherence, and lower lost-to-follow-up rate as opposed to self-transfer in pediatric-onset inflammatory bowel disease patients: results of a longitudinal, follow-up, controlled study.Therapeutic advances in gastroenterology · 2024Article
- Exploring six successful nurse-led transition clinics: Experiences and outcomes.Health care transitions · 2024Article
- Benefits of Paediatric to Adult Transition Programme in Inflammatory Bowel Disease: The BUTTERFLY Study of GETECCU and SEGHNP.Journal of clinical medicine · 2023Article
- Clinical Application of a Peer Coaching Intervention to Enhance Self-Management for Adolescents and Young Adults With Inflammatory Bowel Disease.Clinical practice in pediatric psychology · 2022Article
- Outcomes in Patients with Inflammatory Bowel Disease Transitioning from Pediatric to Adult Care: A Scoping Review.Journal of pediatric gastroenterology and nutrition · 2022Article
- Earnings during adulthood in patients with childhood-onset inflammatory bowel disease: a nationwide population-based cohort study.Alimentary pharmacology & therapeutics · 2022Article
- Are transition preparation consultations for adolescents with chronic conditions valuable? A mixed-methods study.European journal of pediatrics · 2022Article
- Transition of Adolescents with Inflammatory Bowel Disease-Are the Pediatric Teams up to the Task?Children (Basel, Switzerland) · 2021Article
- Marfan syndrome.Nature reviews. Disease primers · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveDeveloping and evaluating effective transition interventions for young people (16-25 years) with inflammatory bowel disease (IBD) is a high priority. While transition clinics (TCs) have been recommended, little is known about their operating structures and outcomes. This study aimed to gain insight into the value of a TC compared with direct handover care.
designControlled mixed-methods evaluation of process outcomes, clinical outcomes and patient-reported outcomes.
settingTwo outpatient IBD clinics in the Netherlands.
participantsData collection included: semistructured interviews with professionals (n=8), observations during consultations with young people (5×4 hours), medical chart reviews of patients transferred 2 to 4 years prior to data collection (n=56 in TC group; n=54 in control group) and patient questionnaires (n=14 in TC group; n=19 in control group). OUTCOMES: Data were collected on service structures and daily routines of the TC, experienced barriers, facilitators and benefits, healthcare use, clinical outcomes, self-management outcomes and experiences and satisfaction of young people with IBD.
resultsAt the TC, multidisciplinary team meetings and alignment of care between paediatric and adult care providers were standard practice. Non-medical topics received more attention during consultations with young people at the TC. Barriers experienced by professionals were time restrictions, planning difficulties, limited involvement of adult care providers and insufficient financial coverage. Facilitators experienced were high professional motivation and a high case load. Over the year before transfer, young people at the TC had more planned consultations (p=0.015, Cohen's d=0.47). They showed a positive trend in better transfer experiences and more satisfaction. Those in direct handover care more often experienced a relapse before transfer (p=0.003) and had more missed consultations (p=0.034, Cohen's d=-0.43) after transfer.
conclusionA TC offer opportunities to improve transitional care, but organisational and financial barriers need to be addressed before guidelines and consensus statements in healthcare policy and daily practice can be effectively implemented.
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