Evidence map›Paper›PMID 31910840›Full record

ArticleBMC public health2020

What predicts the proxy-reported health-related quality of life of adolescents with cerebral palsy in Bangladesh?

Rosalie Power, Claire Galea, Mohammad Muhit, Eamin Heanoy, Tasneem Karim, Nadia Badawi, Gulam Khandaker

Open access · goldAbstract read
In one paragraph

Article in BMC public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
3.2field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 34 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 2 countries.

Rosalie PowerDiscipline of Child and Adolescent Health, Sydney Medical School, the University of Sydney, Sydney, NSW, Australia. rpow8982@uni.sydney.edu.au.ORCID http://orcid.org/0000-0001-9434-3941
Claire GaleaDiscipline of Child and Adolescent Health, Sydney Medical School, the University of Sydney, Sydney, NSW, Australia.
Mohammad MuhitAsian Institute of Disability and Development (AIDD), University of South Asia, Dhaka, Bangladesh.
Eamin HeanoyAsian Institute of Disability and Development (AIDD), University of South Asia, Dhaka, Bangladesh.
Tasneem KarimDiscipline of Child and Adolescent Health, Sydney Medical School, the University of Sydney, Sydney, NSW, Australia.
Nadia BadawiDiscipline of Child and Adolescent Health, Sydney Medical School, the University of Sydney, Sydney, NSW, Australia.
Gulam KhandakerDiscipline of Child and Adolescent Health, Sydney Medical School, the University of Sydney, Sydney, NSW, Australia.
The University of Sydney · AUUniversity of South Asia · BD

Funding

Cerebral Palsy Alliance Research Foundation CDG04617Cerebral Palsy Alliance Research Foundation CDG6416Cerebral Palsy Alliance Research Foundation PG3615
6 · The paper itself

Abstract

backgroundThe health-related quality of life (HRQoL) of adolescents with CP in low and middle-income countries is often poor, as is the case in Bangladesh. This exploratory study examined what factors predict the proxy-reported HRQoL of adolescents with CP in rural Bangladesh, a typical low- and middle-income country (LMIC).

methodsAdolescents with CP (10 to 18y) were identified using the Bangladesh Cerebral Palsy Register. HRQoL was assessed using the Cerebral Palsy Quality of Life-Teens proxy-report questionnaire (CPQoL-Teens), adolescent mental health using the Strengths and Difficulty Questionnaire (SDQ) and caregiver mental health using the Depression, Anxiety and Stress Scale (DASS-21). Theoretical and statistical interests (i.e. bivariate analysis, p < 0.05) identified potential predictors which were entered into hierarchical multiple linear regression (HMLR) models in order of clinical significance; HMLR related adolescent clinical characteristics, adolescent and caregiver mental health and proxies of socioeconomic status to CPQoL-Teens dimensions.

resultsOne hundred fifty-four adolescents with CP (mean age 15y 1mo, SD 1y 8mo, female 31.2%) participated in this study. Twenty-four factors were identified to explore for relationship to adolescent proxy-reported HRQoL. Fifteen of the factors correlated to one or more CPQoL-Teens dimension; strongest correlation was between 'feelings about functioning' and motor impairment (r = 0.545). Nine were predictive of CPQoL-Teens dimensions; adolescent sex, school attendance, severity of motor impairment, hearing and speech impairment, mother's education, primary caregiver depression and stress, and having a sanitary latrine at home resulting in score changes of between 0.79 (95% CI 0.24 to 1.35) to 35.1 (95% CI 6.03 to 64.22).

conclusionsMany of the factors predicting the proxy-reported HRQoL of adolescents with CP are amenable to intervention, and have the potential to improve adolescent wellbeing. Several determinants are priorities of the sustainable development goals (SDGs); these findings should inform resource prioritization to improve the wellbeing of adolescents with CP in Bangladesh and other LMICs.

Indexed as

Poverty AreasAdolescentBangladeshCaregiversCerebral PalsyFemaleHumansMaleMultivariate AnalysisQuality of LifeRural PopulationSurveys and QuestionnairesAdolescentBangladeshCerebral palsyDeterminantsDisabilityHealth-related quality of lifeLow-middle-income country (LMIC)Teenager

Identifiers

PMID31910840
PMCPMC6947952
OpenAlexW2999115709

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.