ArticleGerontology & geriatric medicine
Understanding User Involvement in Research in Aging and Health.
Article in Gerontology & geriatric medicine. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Establishing a Health CASCADE-Curated Open-Access Database to Consolidate Knowledge About Co-Creation: Novel Artificial Intelligence-Assisted Methodology Based on Systematic Reviews.Journal of medical Internet research · 2023Pooled it
- Health promotion research involving older adults in the Nordic countries: a scoping review of doctoral theses.Primary health care research & development · 2026Article
- Exploring conditions for implementing daily monitoring of Behavioral and Psychological Symptoms of Dementia (BPSD) in dementia care: insights from a participatory design study.BMC geriatrics · 2026Article
- Case study on challenges in research with public partners: A personal data incident during recruitment for a survey study on ageing and housing.BMC research notes · 2025Article
- Exploring co-adaptation for public health interventions: insights from a rapid review and interviews.BMC public health · 2025Review
- Outputs from a model of co-research with older care-experienced people in Sweden to advance eldercare services.Research involvement and engagement · 2024Article
- Research collaboration with older people as a matter of scientific quality and ethics: a focus group study with researchers in ageing and health.Research involvement and engagement · 2024Article
- "Why involve older people in research?" Revisiting Alan Walker's earlier editorial based on recent experiences from the UserAge research programme.Research involvement and engagement · 2023Article
- Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice.Research involvement and engagement · 2023Article
- Article
- User involvement in ageing and health research: a survey of researchers' and older adults' perspectives.Health research policy and systems · 2022Article
- Awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden.PloS one · 2022Article
- User Involvement in Myasthenia Gravis Research.Frontiers in neurology · 2022Article
- Research as an essentiality beyond one's own competence: an interview study on frail older people's view of research.Research involvement and engagement · 2021Article
- What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?Research involvement and engagement · 2021Article
- Exploring Associations of Housing, Relocation, and Active and Healthy Aging in Sweden: Protocol for a Prospective Longitudinal Mixed Methods Study.JMIR research protocols · 2021Article
- Involvement of professionals in research: knowledge integration, development of practice, and challenges: a group concept mapping study.Health research policy and systems · 2021Article
- Article
- Everyday life in a Swedish nursing home during the COVID-19 pandemic: a qualitative interview study with persons 85 to 100 years.BMJ open · 2021Article
- Involving frail older patients in identifying outcome measures for transitional care-a feasibility study.Research involvement and engagement · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
User involvement in research is advocated as an avenue for efficient societal developments. In this article, we identify potentials, problems, and challenges related to research on aging and health, and identify and illustrate research priorities using an evolving research program as an example. Involving user representatives in the development phase, the UserAge program engages researchers at four universities in Sweden. The program builds upon previous and ongoing research with user involvement. The goals are to maximize the impact of user involvement, enhance the execution of high-quality research, increase the knowledge about what difference user involvement can make, and evaluate the impact of research about and with user involvement. Taken together and communicated in the international scientific community as well as in a wide range of public arenas, the empirical results, capacity-building, and modeling efforts of UserAge will have an impact not only on the present situation but also on the future.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.