ArticleJournal of Taibah University Medical Sciences2019
Vaso-occlusive crises in patients with sickle cell disease: Parents' perspectives and association with disease outcomes.
Article in Journal of Taibah University Medical Sciences, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed, 8 citations in OpenAlex.
- Evaluation of treatment patterns, healthcare resource utilization and cost of illness for sickle cell disease in Ghana: a private medical insurance claims database study.BMC health services research · 2023Article
- Article
- Delayed surgical diagnosis and treatment of severe sickle cell arthropathy: The need to raise clinicians' awareness.Journal of Taibah University Medical Sciences · 2021Article
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
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Abstract
objectivesKSA has been reported to have a high prevalence of sickle cell disease (SCD). The most common complication of SCD in children is pain due to vaso-occlusion crises (VOCs) that ensue when sickle-shaped red blood cells are entrapped in small vessels, leading to infarcts. This study aimed to determine the level of awareness about VOCs among parents of patients with SCD and its correlation with the disease outcomes.
methodsA cross-sectional study was conducted including 123 parents of children with SCD, aged 2-18 years old. All recruited participants were residents of Almadinah Almunawwarah. A structured and validated questionnaire was used for data collection.
resultsThe mean total knowledge score was 30 ± 4. The majority of parents (74%) had a good level of knowledge about SCD. There was a significant association between the total knowledge score and the outcome of VOCs during the year prior (
conclusionIn this study, the parents of SCD patients had a good level of knowledge about VOCs. There was a significant association between the parents' awareness of VOCs and a better disease outcome in their children, as they had fewer attacks and hospital admissions.
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