Evidence map›Paper›PMID 31906947›Full record

ArticleBMC medical ethics2020

What is it like to use a BCI? - insights from an interview study with brain-computer interface users.

Johannes Kögel, Ralf J Jox, Orsolya Friedrich

Open access · goldAbstract read
In one paragraph

Article in BMC medical ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed
5.2field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 63 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 2 countries.

Johannes KögelInstitute of Ethics, History and Theory of Medicine, LMU Munich, Lessingstr. 2, 80336, Munich, Germany. johannes.koegel@med.uni-muenchen.de.ORCID 0000-0002-2103-4643
Ralf J JoxClinical Ethics Unit and Institute of Humanities in Medicine, Lausanne University Hospital and Faculty of Biology and Medicine, University of Lausanne, Avenue de Provence 82, CH-1007, Lausanne, Switzerland.
Orsolya FriedrichInstitute of Philosophy, Faculty of Cultural and Social Sciences, FernUniversität in Hagen, Universitätsstr. 33, 58097, Hagen, Germany.
FernUniversität in Hagen · DELMU Klinikum · DEUniversity of Lausanne · CH

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe neurotechnology behind brain-computer interfaces (BCIs) raises various ethical questions. The ethical literature has pinpointed several issues concerning safety, autonomy, responsibility and accountability, psychosocial identity, consent, privacy and data security. This study aims to assess BCI users' experiences, self-observations and attitudes in their own right and looks for social and ethical implications.

methodsWe conducted nine semi-structured interviews with BCI users, who used the technology for medical reasons. The transcribed interviews were analyzed according to the Grounded Theory coding method.

resultsBCI users perceive themselves as active operators of a technology that offers them social participation and impacts their self-definition. Each of these aspects bears its own opportunities and risks. BCIs can contribute to retaining or regaining human capabilities. At the same time, BCI use contains elements that challenge common experiences, for example when the technology is in conflict with the affective side of BCI users. The potential benefits of BCIs are regarded as outweighing the risks in that BCI use is considered to promote valuable qualities and capabilities. BCI users appreciate the opportunity to regain lost capabilities as well as to gain new ones.

conclusionsBCI users appreciate the technology for various reasons. The technology is highly appreciated in cases where it is beneficial in terms of agency, participation and self-definitions. Rather than questioning human nature, the technology can retain and restore characteristics and abilities which enrich our lives.

Indexed as

Brain-Computer InterfacesSelf ReportAdultAgedFemaleGrounded TheoryHumansInterviews as TopicMaleMiddle AgedPatientsSocial ParticipationAgencyBrain-computer interfacesEmpirical researchNeuroethicsParticipationSelf-imageUser experience

Identifiers

PMID31906947
PMCPMC6945485
OpenAlexW3000356911

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.