Evidence map›Paper›PMID 31903481›Full record

ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2020

Informal Caregiver Burden, Benefits, and Older Adult Mortality: A Survival Analysis.

Teja Pristavec, Elizabeth A Luth

Abstract read
In one paragraph

Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed.

  1. Article
  2. Health Patterns of Dementia Caregivers With Chronic Pain: Latent Profile Analysis of the PROMIS-29 Measure.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  3. Article
  4. Improving Respite Outcomes for Caregivers: Who Benefits and Under What Conditions?Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  5. The mental health implications of informal care receipt stability among older adults with persistent care needs.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025
    Observational
  6. The caregiver burden of idiopathic inflammatory myopathies.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  7. Incomplete Ascertainment of Mortality in a Nationally Representative Longitudinal Study of Community-Living Older Americans.The journals of gerontology. Series A, Biological sciences and medical sciences · 2025
    Article
  8. Article
  9. Article
  10. Pain-attributed care task difficulty among dementia caregivers with chronic pain.Frontiers in pain research (Lausanne, Switzerland) · 2025
    Article
  11. Article
  12. Article
  13. Observational
  14. Article
  15. Review
  16. Article
  17. Article
  18. Article
  19. Caring for aging parents in the last years of life.Journal of the American Geriatrics Society · 2023
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Teja PristavecSocial and Decision Analytics Division, Biocomplexity Institute and Initiative, University of Virginia, Arlington.
Elizabeth A LuthDivision of Geriatrics and Palliative Medicine, Weill Cornell Medicine, New York, New York.

Funding

The National Health and Trends StudyU01AG032947 · NIA · JOHNS HOPKINS UNIVERSITY · PI VICKI A. FREEDMAN, JENNIFER ANN SCHRACK · 2008 to 2026
$169.4M
Pilot CoreP30AG022845 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI Manney Carrington Reid · 2003 to 2026
$15.2M
The Weill Cornell Medicine Research Training Program in Behavioral GeriatricsT32AG049666 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI SARA J CZAJA, Manney Carrington Reid · 2016 to 2026
$3.2M
NIA NIH HHS P30 AG022845NIA NIH HHS T32 AG049666NIA NIH HHS U01 AG032947
6 · The paper itself

Abstract

objectiveInformal caregivers are crucial to maintaining older adults' health, but few studies examine how caregiving receipt is associated with older person longevity. In a nationally representative sample, we prospectively explore whether and how having an informal caregiver is associated with older adult overall mortality, and how caregivers' burden and benefits perceptions relate to care recipient mortality.

methodsWe match six National Health and Aging Trends Study waves (2011-2016) with 2011 National Study of Caregiving data, conducting survival analysis on 7,369 older adults and 1,327 older adult-informal caregiver dyads.

resultsHaving an informal caregiver is associated with 36% (p < .001) higher mortality risk over 6-year follow-up, adjusting for demographic, economic, and health factors. Older adults whose caregivers perceive only burden have 38% higher (p < .05) mortality risk than those with caregivers reporting neither burden nor benefits. This risk is reduced from 38% higher to 5% higher (p < .001) for older adults with caregivers reporting benefits alongside burden, compared to those with caregivers reporting neither perception. DISCUSSION: Having a caregiver may signal impending decline beyond known mortality factors. However, interventions to increase caregivers' benefit perceptions and reduce their burden may decrease mortality risk for older adults with declining health and functional ability.

Indexed as

Caregiver BurdenQuality of LifeAgedAged, 80 and overAttitudeCaregiversCost of IllnessFemaleHumansMaleMortalitySocial PerceptionSocial SupportUnited StatesBenefitsBurdenMortalityNHATSNSOC

Identifiers

PMID31903481
PMCPMC7664316

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.