SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Investigating child self-report capacity: a systematic review and utility analysis.
Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 25 citations in OpenAlex.
- Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Pooled it
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- Development and validation of MyCommunication-Youth: A self-report measure for communicative participation in children, adolescents and young adults.Journal of patient-reported outcomes · 2025Article
- A multi-level examination of impulsivity and links to suicide ideation among Native American youth.Journal of affective disorders · 2024Article
- How do children understand and respond to the EQ-5D-Y-3L? A mixed methods study in a community-based sample of 6-12-year-olds.Health and quality of life outcomes · 2024Article
- An Investigation of Inter-Rater and Intra-Proxy Agreement in Measuring Quality of Life of Children in the Community Using the EQ-5D-Y-3L.PharmacoEconomics · 2024Article
- Validity of mother-child self-perceived oral health for the assessment of 5 years old children's oral health in Indonesia.BMC oral health · 2023Article
- Measuring PROMIS® Social Relationships in Early Childhood.Journal of pediatric psychology · 2022Article
- Risk Factors for Bullying Victimization in Children with Neurofibromatosis Type 1 (NF1).Children (Basel, Switzerland) · 2021Article
- Health Measurement Model-Bringing a Life Course Perspective to Health Measurement: The PRISM Model.Frontiers in pediatrics · 2021Article
- Self-Experienced Difficulties in Communicative Participation in Children With Speech, Language and Communication Needs-A Concept Elicitation Study.International journal of language & communication disordersArticle
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 1 country.
Funding
Abstract
purposeTo identify and evaluate methods for assessing pediatric patient-reported outcome (PRO) data quality at the individual level.
methodsWe conducted a systematic literature review to identify methods for detecting invalid responses to PRO measures. Eight data quality indicators were applied to child-report data collected from 1780 children ages 8-11 years. We grouped children with similar data quality patterns and tested for between-group differences in factors hypothesized to influence self-report capacity.
resultsWe identified 126 articles that described 494 instances in which special measures or statistical techniques were applied to evaluate data quality at the individual level. We identified 22 data quality indicator subtypes: 9 direct methods (require administration of special items) and 13 archival techniques (statistical procedures applied to PRO data post hoc). Application of archival techniques to child-report PRO data revealed 3 distinct patterns (or classes) of the data quality indicators. Compared to class 1 (56%), classes 2 (36%) and 3 (8%) had greater variation in their PRO item responses. Three archival indicators were especially useful for differentiating plausible item response variation (class 2) from statistically unlikely response patterns (class 3). Neurodevelopmental conditions, which are associated with a range of cognitive processing challenges, were more common among children in class 3.
conclusionA multi-indicator approach is needed to identify invalid PRO responses. Once identified, assessment environments and measurement tools should be adapted to best support these individuals' self-report capacity. Individual-level data quality indicators can be used to gauge the effectiveness of these accommodations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.