ArticleMaternal and child health journal2020
Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders.
Article in Maternal and child health journal, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Parents of youth and young adults with intellectual and developmental disabilities: Barriers experienced during transition.Journal of pediatric rehabilitation medicine · 2026Article
- Teens' Time Alone with Their Clinician: Receipt of Health Care Transition Preparation and Anticipatory Guidance.Journal of the American Board of Family Medicine : JABFM · 2026Article
- Parent perceptions of their child's cognitive impairment linked to their views on support for healthcare transition.Epilepsia open · 2025Article
- An Examination of Health Care Transition Experiences Through Parents' Reflections About Their Sons or Daughters Who Have Intellectual and Developmental Disabilities.Children (Basel, Switzerland) · 2025Article
- The New Frontier of Adult Neurodevelopmental Care: Individual and Caregiver Values.Neurology. Clinical practice · 2025Article
- Red flags in global autism data: a forensic analysis of prevalence patterns and official aid dependencies.Frontiers in psychiatry · 2025Article
- Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders' Perspectives.Community mental health journal · 2024Article
- Family Medicine Residency Program Directors' Perception of Curricular Elements Related to Autism: A CERA Study.Family medicine · 2024Article
- Health care transition recommendations for young people with intellectual and developmental disabilities and co-occurring mental health conditions: Stakeholder survey findings.Health care transitions · 2024Article
- Framework for developing self-actualization skills in young adults with autism.Health care transitions · 2024Article
- Parent Ratings of Health Insurance Adequacy for Children with Emotional, Behavioral, or Developmental Problems.Academic pediatrics · 2023Article
- Health conditions in autism: Defining the trajectory from adolescence to early adulthood.Autism research : official journal of the International Society for Autism Research · 2023Article
- Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study.Journal of autism and developmental disorders · 2023Article
- Readiness for transition to adult health care among US adolescents, 2016-2020.Child: care, health and development · 2023Article
- Health Care Utilization for Privately and Publicly Insured Children During Autism Insurance Reform.Journal of autism and developmental disorders · 2022Article
- Transition to Adulthood for Autistic Adolescents: Topics Discussed by Healthcare Providers With Autistic Patients and Families.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2022Article
- Health Status and Health Care Use Among Adolescents Identified With and Without Autism in Early Childhood - Four U.S. Sites, 2018-2020.MMWR. Morbidity and mortality weekly report · 2021Article
- Support for Transition from Adolescent to Adult Health Care Among Adolescents With and Without Mental, Behavioral, and Developmental Disorders - United States, 2016-2017.MMWR. Morbidity and mortality weekly report · 2020Article
- Anxiety, Depression, and Behavioural Problems Among US Children and Adolescents, 2016-2022.Infant and child developmentArticle
Corrections and comments
- Erratum issued
Authors and funding
4 authors.
Funding
Abstract
objectiveTo estimate the prevalence of health care transition components among youth with autism spectrum disorder (ASD) aged 12-17 using the 2016 National Survey of Children's Health (NSCH), compared to youth with other mental, behavioral, or developmental disorders (MBDDs) or youth without MBDDs.
methodsThe 2016 NSCH is a nationally and state representative survey that explores issues of health and well-being among children ages 0-17. Within the NSCH, parents of a subset of youth, ages 12-17, are asked a series of questions about their youth's eventual transition into the adult health care system. The current study explores components of this transition, comparing youth diagnosed with ASD, youth with other mental, behavioral, or developmental disorders (MBDDs), and youth without MBDDs.
resultsApproximately 1-in-4 youth with ASD had actively worked with their doctor to understand future changes to their health care, significantly less than youth with other MBDDs and youth without MBDDs. Fewer than 2-in-5 youth with ASD had met with their doctor privately or had a parent who knew how their youth would be insured when they reached adulthood.
conclusionsThe current analysis of a nationally representative sample of youth reveals discrepancies in the proportion of youth with ASD receiving appropriate health care transition planning compared to youth with other MBDDs and youth without MBDDs. These findings suggest the potential for barriers among youth with ASD to effectively transitioning into the adult health care system.
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