Evidence map›Paper›PMID 31892529›Full record

SynthesisBMJ health & care informatics2019

Cerebral palsy information system with an approach to information architecture: a systematic review.

Mina Afzali, Korosh Etemad, Alireza Kazemi, Reza Rabiei

Open access · goldAbstract readSystematic Review
In one paragraph

Synthesis in BMJ health & care informatics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.8field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 7 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Mina AfzaliDepartment of Health Information Technology and Management, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences School of Paramedical Sciences, Tehran, Iran.
Korosh EtemadDepartment of Epidemiology, School of Public Health and Safety, Shahid Beheshti University of Medical Sciences School of Public Health, Tehran, Iran.
Alireza KazemiDepartment of Health Information Technology and Management, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences School of Paramedical Sciences, Tehran, Iran.
Reza RabieiDepartment of Health Information Technology and Management, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences School of Paramedical Sciences, Tehran, Iran r.rabiei@sbmu.ac.ir.
Shahid Beheshti University of Medical Sciences · IR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLong-term complications and high costs of cerebral palsy (CP) as well as inconsistency in data related to this disease reveal the need for extensive planning to obtain accurate and complete data for the effective management of patients.

objectiveThe present study reviews the information architecture of CP information system.

methodThe relevant articles published from early 1988 to 31 July 2018 were extracted through searching PubMed, Scopus, Cochran, Web of Science and Embase databases conducted independently by two researchers.

resultsA total of 39 articles on CP information system were reviewed. Hospitals, rehabilitation centres and outpatient clinics were found to be the main organisations in charge of generating CP data. Each CP database used several data sources, with hospitals serving as the most important sources of information and the main generators of data. The main CP datasets were categorised into four groups of demographic data, diagnosis, motor function and visual impairment. The majority of data standards were related to the use of the International Classification of Functioning, Disability and Health and the Gross Motor Function Classification System. Finally, accuracy, completeness and consistency were the criteria employed in data quality control.

conclusionDeveloping a robust CP information system requires deploying the principles of information architecture when developing the system, as these can improve data structure and content of CP system, as well as data quality and data sharing.

Indexed as

Cerebral PalsyRegistriesElectronic Health RecordsHealth Information ManagementHumansCerebral PalsyData sourcesInformation ArchitectureInformation System

Identifiers

PMID31892529
PMCPMC7252971
OpenAlexW2997768269

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.