ArticleInternational journal for equity in health2019
Social inequalities in the burden of care: a dyadic analysis in the caregiving partners of persons with a physical disability.
Article in International journal for equity in health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Factors influencing the caregiver burden on primary family caregivers of stroke survivors: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Caregiver Mental Health and Sociodemographic Factors Associated with the Burden of Care in Taiwan Among Primary Caregivers of Patients with Major Depressive Disorder: A Cross-Sectional Study.Neuropsychiatric disease and treatment · 2026Article
- Formal and Informal Care Utilization in Mild Cognitive Impairment and Mild Dementia due to Alzheimer's Disease: Cross-Sectional and Longitudinal Analyses of RUD-Lite Data from the Tauriel Study.Dementia and geriatric cognitive disorders · 2025Article
- Barriers to providing long-term care for persons with spinal cord injury in Switzerland: a qualitative study of service delivery and workforce challenges.BMC health services research · 2025Article
- Stress and Quality of Life in Caregivers of Patients with Multiple Sclerosis.Medicina (Kaunas, Lithuania) · 2024Article
- Understanding caregiver burden and quality of life in Kerala's primary palliative care program: a mixed methods study from caregivers and providers' perspectives.International journal for equity in health · 2024Article
- "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease.BMC nephrology · 2024Article
- The moderating effect of care time on care-related characteristics and caregiver burden: differences between formal and informal caregivers of dependent older adults.Frontiers in public health · 2024Article
- Bridging the gap: a translational perspective in spinal cord injury.Experimental biology and medicine (Maywood, N.J.) · 2024Review
- Mobilizing morality: how caregivers in Vietnam handle the challenges of daily diabetes care.BMC public health · 2023Article
- Will your child take care of you in your old age? Unequal caregiving received by older parents from adult children in Sweden.European journal of ageing · 2023Article
- Environmental and systems experiences of persons with spinal cord injury and their caregivers when transitioning from acute care to community living during the COVID-19 pandemic: a comparative case study.Spinal cord series and cases · 2023Article
- A Cross-Sectional Study on the Associations between Economic, Social, and Political Resources and Subjective Caregiver Burden among Older Spousal Caregivers in Two Nordic Regions.Nursing reports (Pavia, Italy) · 2023Article
- Does gender moderate the association between socioeconomic status and health? Results from an observational study in persons with spinal cord injury living in Morocco.Frontiers in rehabilitation sciences · 2023Article
- Inequalities in unpaid carer's health, employment status and social isolation.Health & social care in the community · 2022Article
- How Can Policymakers be Encouraged to Support People With Spinal Cord Injury-Scoping Review.Global spine journal · 2022Article
- An integrative review of the social determinants of mental health among older caregivers.Nursing open · 2022Review
- Negative and positive experiences of caregiving among family caregivers of older blunt trauma patients.PloS one · 2022Article
- Characteristics of people with dementia lost to follow-up from a dementia care center.International journal of geriatric psychiatry · 2022Article
- Pathways to loneliness: a mediation analysis investigating the social gradient of loneliness in persons with disabilities in Switzerland.International journal for equity in health · 2021Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSocioeconomic position (SEP) is an important contextual factor in the Stress Process Model of caregiving. However, the basic assumption that low SEP is associated with greater caregiver burden has so far lacked empirical support. The objective of this study was to investigate social inequalities in the caregiver burden among caregiving partners of persons with a physical disability, i.e., spinal cord injury (SCI), applying a dyadic approach. More specifically, we investigated 1) the association of the caregivers' SEP with caregiver burden ('actor effect'); 2) the association of the care-receivers' SEP with caregiver burden ('partner effect'), and 3) potential mediators of the association between SEP and caregiver burden.
methodsCross-sectional survey data from 118 couples of persons with SCI and their partners living in Switzerland was used. We firstly employed logistic regression to investigate the actor and partner effects of SEP on objective (hours of caregiving) and subjective caregiver burden (Zarit Burden Interview). We additionally used structural equation modelling to explore whether unfulfilled support needs, psychosocial resources and the care-receivers health status mediated the association between SEP and caregiver burden. SEP was operationalized by household income, education, subjective social position, financial strain and home ownership.
resultsWe observed a consistent trend towards higher objective and subjective burden in lower SEP groups. Caregivers with higher subjective social positon and home ownership indicated lower subjective burden, and caregivers with higher education and absence of financial strain reported lower objective burden. Further evidence suggested a partner effect of SEP on caregiver burden, whereby objective caregiver burden was reduced in couples where the care-receiver had a higher educational level. The negative association between SEP and subjective burden was partially mediated by the unfulfilled support needs and deprived psychological resources of the caregiver, and the poor health status of the care-receiver. Similar mediation effects were not supported for objective burden.
conclusionsOur study, in the context of SCI, provides support for the contextual role of SEP in the Stress Process Model of caregiving. To reduce subjective caregiver burden, policy programs may target the strengthening of psychosocial resources, or the improvement of access to support services for caregivers with low SEP.
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