Evidence map›Paper›PMID 31888944›Full record

Trial reportBMJ open2019

Exploring the experiences of people in Ontario, Canada who have trouble affording medicines: a qualitative concept mapping study.

Hannah Yaphe, Itunuoluwa Adekoya, Liane Steiner, Darshanand Maraj, Patricia O'Campo, Nav Persaud

Registry-linked trialAbstract readRandomized Controlled Trial
In one paragraph

Trial report in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02744963 (Carefully seLected and Easily Accessible at No Charge Medications), which is not on this map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02744963 naunknown statusnot on this map

Carefully seLected and Easily Accessible at No Charge Medications

TypeinterventionalSponsorUnity Health TorontoRan2016 to 2020Enrolled784ConditionsMedication Adherence, Inappropriate Prescribing, Diabetes, HypertensionArmsFree and convenient medicine access
3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Trial
  4. Article
  5. Article
  6. Last mile research: a conceptual map.Global health action · 2021
    Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Hannah Yaphe *MAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Ontario, Canada.
Itunuoluwa Adekoya *MAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Ontario, Canada.
Liane SteinerMAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Ontario, Canada.
Darshanand MarajMAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Ontario, Canada.
Patricia O'CampoMAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Ontario, Canada.
Nav PersaudMAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Ontario, Canada nav.persaud@utoronto.ca.ORCID 0000-0003-3327-5580

Funding

CIHR
6 · The paper itself

Abstract

objectivesThe experiences of people who report cost-related medicine non-adherence are not well documented. We aimed to present experiences relating to accessing medicines reported by the participants in a randomised controlled trial of free medicine distribution.

methodsThe trial consisted of primary care patients from a large urban family practice and three rural family practices who reported cost-related medicine non-adherence. Participants were randomly allocated to continue their poor access (control) or to receive free and easily accessible medicines (intervention). As part of data collection for the first year of the trial, participants were asked closed and open-ended questions to assess their adherence to medication, health outcomes and their experiences in relation to medicine accessibility. We conducted a qualitative concept mapping study in which we analysed and summarised participants' responses to the open-ended question on a concept map to visually present their experiences relating to accessing medicines.

resultsOf the 524 trial participants contacted, 198 (38%) responded to the open-ended question. The concept map contains clusters that represent eight types of experiences of participants related to medicine access including stress, relationship with doctor, health impact, quality of life, sacrificing other essentials, medicines are expensive, financial impact and adherence. These experiences fall under two major themes, experiences relating to personal finances and experiences relating to well-being, which are bridged by a central cluster of adherence.

conclusionsThe experiences shared by the participants demonstrate that access to medicines impacts people's finances and well-being as well as their adherence to prescribed medicines. These results indicate that effects on personal finances and general well-being should be measured for interventions and policy changes aimed at improving medicine access. TRIAL REGISTRATION NUMBER: This article is linked to the Carefully Selected and Easily Accessible at No Charge Medicines (CLEAN Meds) randomised controlled trial (trial registration number: NCT02744963).

Indexed as

Costs and Cost AnalysisDrug MonitoringAdultDrug CostsFemaleHumansMaleMiddle AgedOntarioQualitative Researchcost-related medicine non-adherencefamily medicinehealth policymedicine accesspharmacare

Identifiers

PMID31888944
PMCPMC6937130

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.