Evidence map›Paper›PMID 31885332›Full record

ArticleAJOB empirical bioethics

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.

Jacqueline Savard, Chriselle Hickerton, Sylvia A Metcalfe, Clara Gaff, Anna Middleton, Ainsley J Newson

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in AJOB empirical bioethics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. The attitude of young people in the city of Yakutsk to DNA-testing.International journal of circumpolar health · 2021
    Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jacqueline SavardFaculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, The University of Sydney, Sydney, NSW, Australia.ORCID 0000-0002-7965-6103
Chriselle HickertonGenetics Education and Health Research, Murdoch Children's Research Institute, Victoria, Australia.ORCID 0000-0001-6909-0970
Sylvia A MetcalfeGenetics Education and Health Research, Murdoch Children's Research Institute, Victoria, Australia.ORCID 0000-0002-5714-5716
Clara GaffDepartment of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia.ORCID 0000-0003-0160-4159
Anna MiddletonSociety and Ethics Research, Wellcome Genome Campus Society and Ethics Research Group, Hinxton, Cambridge, United Kingdom.ORCID 0000-0003-3103-8098
Ainsley J NewsonFaculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, The University of Sydney, Sydney, NSW, Australia.ORCID 0000-0002-3460-772X

Funding

Wellcome TrustWellcome Trust 206194
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Consumer BehaviorGenetic TestingPersonal AutonomyAdolescentAdultAgedAged, 80 and overAustraliaDirect-To-Consumer Screening and TestingFemaleFocus GroupsGenomicsHealth Knowledge, Attitudes, PracticeHumansInterviews as TopicMalebioethicsdirect-to-consumer testinggenetic testingpersonal autonomypersonal genomicsqualitative research

Identifiers

PMID31885332
PMCPMC7048070

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.