ArticleJournal of human nutrition and dietetics : the official journal of the British Dietetic Association2020
Withdrawing gluten-free food from prescriptions in England: a mixed-methods study to examine the impact of policy changes on quality of life.
Article in Journal of human nutrition and dietetics : the official journal of the British Dietetic Association, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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11 citing papers in PubMed, 1 synthesis or guideline pooled it, 14 citations in OpenAlex.
- A Meta-Synthesis Exploring Daily Experiences of Adults With Coeliac Disease in Adhering to a Gluten-Free Diet.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025Pooled it
- Living with coeliac disease in unsupportive systems: a qualitative study of women's free-text narratives.International journal of nursing studies advances · 2026Article
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- Parental perspectives concerning gluten-free food insecurity in households with children with coeliac disease: take away messages for policy makers.Journal of nutritional science · 2026Article
- Patients' views on a subsidy card model for gluten-free food access: a qualitative study.BMC health services research · 2025Article
- The relationship between diet quality, social participation, quality of life, and occupational balance in adolescents with Celiac disease.Journal of health, population, and nutrition · 2025Article
- From Struggle to Strength: A Multicentric Study on How Public Policies for Celiac Disease Transform Lives.Nutrients · 2024Article
- The financial impact on people with coeliac disease of withdrawing gluten-free food from prescriptions in England: findings from a cross-sectional survey.BMC health services research · 2024Article
- The psychosocial experiences of adults diagnosed with coeliac disease: a qualitative evidence synthesis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Review
- Withdrawing gluten-free food from prescriptions in England: a mixed-methods study to examine the impact of policy changes on quality of life.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2020Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSome local areas in England stopped have gluten-free prescriptions for coeliac disease. An explanatory mixed-methods study has investigated the impact of these changes.
methodsA cross-sectional survey with 1697 participants was followed by 24 qualitative interviews. The survey included questions on the use of prescriptions and healthcare services, as well as the Coeliac Disease Assessment Questionnaire (CDAQ) to assess quality of life. The survey data were analysed by descriptive statistics, analysis of variance and regression analysis, and the interviews were analysed by thematic analysis. Findings from the interviews guided the survey analysis.
resultsDietary burden was significantly different between prescribing and nonprescribing areas, with little impact on other aspects of quality of life. Survey participants in nonprescribing areas who felt more impacted by the prescription changes reported a lower quality of life. Satisfaction with and use of services was lower in nonprescribing areas. Interviews indicated that, after initial frustrations, most people adapted to the changed prescription policy. However, there was a clear preference for gluten-free prescriptions to be available, in particular for staple foods.
conclusionsThe main quality of life impact was on Dietary burden. It is encouraging that most participants in the present study maintained a good quality of life. However, issues of worse experiences of care, lower follow-up opportunities and inequity arose, and these should be taken into consideration in decisions on gluten-free food prescriptions. The new guidelines for the National Health Service in England have retained prescriptions for bread and flour mixes, which is more limited than the range of staple foods preferred in the present study.
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