Evidence map›Paper›PMID 31874899›Full record

ArticleBMJ open2019

Exploring the experiences and perspectives of substitute decision-makers involved in decisions about deceased organ donation: a qualitative study protocol.

Jacob Crawshaw, Justin Presseau, Zack van Allen, Livia Pinheiro Carvalho, Kim Jordison, Shane English, Dean A Fergusson, Francois Lauzier, Alexis F Turgeon, Aimee J Sarti and 17 more

Registry-linked trialOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03850847 (Understanding Decision Making in the Intensive Care Unit), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.6field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03850847 unknown statusnot on this map

Understanding Decision Making in the Intensive Care Unit: a National Study

TypeobservationalSponsorCentre hospitalier de l'Université de Montréal (CHUM)Ran2019 to 2025Enrolled292ConditionsOrgan DonationArmsStep 1: Semi-structured Interviews, Step 2: National Telephone Survey
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
  2. Knowledge gaps in the definition and determination of death.Canadian journal of anaesthesia = Journal canadien d'anesthesie · 2023
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors at 14 institutions in 1 country.

Jacob CrawshawClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.ORCID 0000-0002-6302-1496
Justin PresseauClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Zack van AllenClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Livia Pinheiro CarvalhoInnovation Hub, Centre de Recherche du CHUM, Montréal, Québec, Canada.
Kim JordisonCanadian Donation and Transplant Research Program, Edmonton, Alberta, Canada.
Shane EnglishClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Dean A FergussonClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Francois LauzierPopulation Health and Optimal Health Practices Unit (Trauma-Emergency-Critical Care Medicine), CHU de Quebec-Universite Laval, Quebec City, Québec, Canada.
Alexis F TurgeonPopulation Health and Optimal Health Practices Unit (Trauma-Emergency-Critical Care Medicine), CHU de Quebec-Universite Laval, Quebec City, Québec, Canada.ORCID 0000-0001-5675-8791
Aimee J SartiCritical Care Medicine, Ottawa Hospital, Ottawa, Ontario, Canada.
Claudio MartinMedicine (Critical Care), Schulich School of Medicine and Dentistry, London, Ontario, Canada.
Frédérick D'AragonAnesthesiology, Universite de Sherbrooke Faculte de medecine et des sciences de la sante, Sherbrooke, Quebec, Canada.
Alvin Ho-Ting LiClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Greg KnollUniversity of Ottawa Faculty of Medicine, Ottawa, Ontario, Canada.
Ian BallMedicine, London Health Sciences Centre, London, Ontario, Canada.
Jamie BrehautClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Karen E A BurnsCritical Care, St Michael's Hospital, Toronto, Ontario, Canada.
Marie-Chantal FortinMedicine (Critical Care), Centre Hospitalier de L'Universite de Montreal, Montréal, Québec, Canada.
Matthew WeissCanadian Donation and Transplant Research Program, Edmonton, Alberta, Canada.
Maureen MeadeMedicine (Critical Care), McMaster University, Hamilton, Ontario, Canada.
Pierre MarsolaisMedicine, Hôpital du Sacré-Coeur de Montréal, Montreal, Québec, Canada.
Sam ShemieCritical Care, McGill University, Montreal, Québec, Canada.
Sanabelle ZaabatMedicine, Université de Montréal, Montréal, Québec, Canada.
Sonny DhananiCritical Care, CHEO, Ottawa, Ontario, Canada.
Simon C KittoInnovation in Medical Education, University of Ottawa, Ottawa, Ontario, Canada.
Michaël ChasséInnovation Hub, Centre de Recherche du CHUM, Montréal, Québec, Canada michael.chasse@umontreal.ca.
Canadian Donation and Transplantation Research Program and the Canadian Critical Care Trials Group
University of Ottawa · CACentre Hospitalier de l’Université de Montréal · CAOttawa Hospital · CAThe Quebec Population Health Research Network · CAAgricultural Research Institute of Ontario · CAHôpital du Sacré-Cœur de Montréal · CALondon Health Sciences Centre · CAMcGill University · CAMcMaster University · CASt. Michael's Hospital · CAUniversité de Montréal · CAUniversité de Sherbrooke · CAUniversité Laval · CAWestern University · CA

Funding

CIHR PJT-155997
6 · The paper itself

Abstract

introductionIn Canada, deceased organ donation provides over 80% of transplanted organs. At the time of death, families, friends or others assume responsibility as substitute decision-makers (SDMs) to consent to organ donation. Despite their central role in this process, little is known about what barriers, enablers and beliefs influence decision-making among SDMs. This study aims to explore the experiences and perspectives of SDMs involved in making decisions around the withdrawal of life-sustaining therapies, end-of-life care and deceased organ donation. METHODS AND ANALYSIS: SDMs of 60 patients admitted to intensive care units will be enrolled for this study. Ten hospitals across five provinces in Canada in a prospective multicentre qualitative cohort study. We will conduct semistructured telephone interviews in English or French with SDMs between 6 and 8 weeks after the patient's death. Our sampling frame will stratify SDMs into three groups: SDMs who were not approached for organ donation; SDMs who were approached and consented to donate and SDMs who were approached but did not consent to donate. We will use two complementary theoretical frameworks-the Common-Sense Self-Regulation Model and the Theoretical Domains Framework- to inform our interview guide. Interview data will be analysed using deductive directed content analysis and inductive thematic analysis. ETHICS AND DISSEMINATION: This study has been approved by the Centre Hospitalier de l'Université de Montréal Research Ethics Board. The findings from this study will help identify key factors affecting substitute decision-making in deceased organ donation, reasons for non-consent and barriers to achieve congruency between SDM and patient wishes. Ultimately, these data will contribute to the development and evaluation of tools and training for healthcare providers to support SDMs in making decisions about organ donation. TRIAL REGISTRATION NUMBER: NCT03850847.

Indexed as

AttitudeDecision MakingResearch DesignTissue and Organ ProcurementCadaverCohort StudiesHumansMulticenter Studies as TopicQualitative Researchintensive and critical carequalitative researchquality in health care

Identifiers

PMID31874899
PMCPMC7008441
OpenAlexW2996859395

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.