ArticleAutism research : official journal of the International Society for Autism Research2020
Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors.
Article in Autism research : official journal of the International Society for Autism Research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04935593 (Strengthening Social, Emotional and Behavioral Resilience), which is not on this map. Cited by 70 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Strengthening Social, Emotional and Behavioral Resilience: The RENEW (Resilience in Emotional and Behavioral Wellbeing) Pilot Randomized Controlled Trial
Who cites it
70 citing papers in PubMed, 1 synthesis or guideline pooled it, 138 citations in OpenAlex.
- Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians.Autism research : official journal of the International Society for Autism Research · 2025Pooled it
- Cultural and Linguistic Adaptation of an Autism Parent Mediated Intervention for Spanish Speaking Latinos.Journal of autism and developmental disorders · 2026Article
- Personalized Lifespan Approach to Autism Assessment: A Clinical and System Framework for Developmentally Informed Assessment Across the Life-Course.Autism research : official journal of the International Society for Autism Research · 2026Article
- A Prospective Birth Cohort Study on the Association Between Cord Blood Acylcarnitine Profile and Childhood Risk of Attention-Deficit/Hyperactivity Disorder and Autism Spectrum Disorder.Journal of the American Academy of Child and Adolescent Psychiatry · 2026Article
- Analysis of Disparities in Diagnosis of Autism Spectrum Disorder in the Military Health System Pediatrics Population.Journal of autism and developmental disorders · 2026Article
- Assessing Social Identity in Autistic Individuals: Evaluating A Self-Report Questionnaire in the Netherlands.Autism : the international journal of research and practice · 2026Article
- Associations Between Sociodemographic Predictors and Age of Referral for Autism Spectrum Disorder (ASD) Diagnosis Since the Beginning of the COVID-19 pandemic.Journal of racial and ethnic health disparities · 2026Article
- Feasibility of Large-Scale Development-Focused EEG Research in a Hospital-Based Primary Care Setting.Academic pediatrics · 2026Article
- Autism Prevalence, Co-occurring Intellectual Disability, and Support Needs Differ for Somali and Hmong Communities in Minnesota.Journal of autism and developmental disorders · 2026Article
- Fragile X Syndrome in Adulthood: A Study of Electronic Health Records.American journal on intellectual and developmental disabilities · 2026Article
- Artificial intelligence, autism care, and health equity: a public health narrative review.Frontiers in public health · 2026Review
- Examining Sociodemographic Factors Related to Autism Screening Rates of Children in Early Intervention.Journal of autism and developmental disorders · 2025Article
- What Aspects Promote Health and Well-Being Among Autistic Adults and How Can They Be Incorporated Into Nursing Care? A Theoretical Podcast-Based Study.Scandinavian journal of caring sciences · 2025Article
- What Happens After Autism Screening-Factors That Predict Evaluation Attendance.Journal of autism and developmental disorders · 2025Article
- Internet Guidance on Feeding for Parents of Children With Autism.Journal of autism and developmental disorders · 2025Article
- Screening Options in Autism Telediagnosis: Examination of TAP, M-CHAT-R, and DCI Concordance and Predictive Value in a Telediagnostic Model.Journal of autism and developmental disorders · 2025Article
- Accuracy of the Screening Tool for Autism in Toddlers and Young Children in the primary care setting.Autism : the international journal of research and practice · 2025Article
- Exploring Factors of Diagnostic Timing Among Black Autistic Youth.Journal of autism and developmental disorders · 2025Article
- Pre-K-12 Teachers' Views on ASD+ADHD: Prevalence Estimates and Teaching Preparedness.Children (Basel, Switzerland) · 2025Article
- The Role of Artificial Intelligence for Early Diagnostic Tools of Autism Spectrum Disorder: A Systematic Review.Turkish archives of pediatrics · 2025Article
10 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 6 institutions in 1 country.
Funding
Abstract
The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records and (b) evaluate differences in demographic, individual, and service factors between children with and without a documented ASD diagnosis. ASD surveillance was conducted in selected areas of Arizona, Arkansas, Colorado, Georgia, Maryland, Minnesota, Missouri, New Jersey, North Carolina, Tennessee, and Wisconsin. Children were defined as having ASD if sufficient social and behavioral deficits and/or an ASD diagnosis were noted in health and/or education records. Among 4,498 children, 1,135 (25%) had ASD indicators without having an ASD diagnosis. Of those 1,135 children without a documented ASD diagnosis, 628 (55%) were not known to receive ASD services in public school. Factors associated with not having a clinical diagnosis of ASD were non-White race, no intellectual disability, older age at first developmental concern, older age at first developmental evaluation, special education eligibility other than ASD, and need for fewer supports. These results highlight the importance of reducing disparities in the diagnosis of children with ASD characteristics so that appropriate interventions can be promoted across communities. Autism Res 2020, 13: 464-473. © 2019 International Society for AutismResearch,Wiley Periodicals, Inc. LAY SUMMARY: Children who did not have a clinical diagnosis of autism spectrum disorder (ASD) documented in health or education records were more likely to be non-White and have fewer developmental problems than children with a clinical diagnosis of ASD. They were brought to the attention of healthcare providers at older ages and needed fewer supports than children with a clinical diagnosis of ASD. All children with ASD symptoms who meet diagnostic criteria should be given a clinical diagnosis so they can receive treatment specific to their needs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.