ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Research and recovery: Can patient participation in research promote recovery for people with complex post-traumatic stress disorder, CPTSD?
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 11 citations in OpenAlex.
- Reintegration interventions for CPTSD: a systematic review.European journal of psychotraumatology · 2021Pooled it
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.Research involvement and engagement · 2023Article
- The experience of patient partners in research: a qualitative systematic review and thematic synthesis.Research involvement and engagement · 2022Review
- Research and recovery: Can patient participation in research promote recovery for people with complex post-traumatic stress disorder, CPTSD?Health expectations : an international journal of public participation in health care and health policy · 2021Article
- A Pluralistic Perspective on Research in Psychotherapy: Harnessing Passion, Difference and Dialogue to Promote Justice and Relevance.Frontiers in psychology · 2021Article
- Article
Corrections and comments
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundA new diagnosis of complex post-traumatic stress disorder, CPTSD, has been agreed by the World Health Organization, WHO, and evidence is needed for what psychological treatment might be effective, particularly from those with experience of the disorder. We used a novel participatory approach to explore patient views and simultaneously studied the impact on the patient researchers of the research process itself. In this paper, we report on the latter section of the study how the involvement in research of patients with CPTSD affected their mental health. Symptoms of CPTSD may include emotional dysregulation, feelings of self-worthlessness and difficulties in relationships.
objectiveThe aim of this study section was to explore whether patients' mental health could be promoted through empowering them to participate in research on CPTSD.
designThe study had a qualitative, participatory design. The clinician who led the research (first author) held group meetings with patient researchers to explore the impact of the research process. The clinician also kept notes on the process in a reflective log. SETTING AND
participantsSix patient researchers participated in research with other patients with lived experience of CPTSD in an NHS outpatient unit in a London hospital. INTERVENTION STUDIED: The research process itself was analysed in group meetings with researchers which the clinician recorded and transcribed.
findingsParticipation in research may promote increased self-confidence and social inclusion for those with CPTSD.
conclusionInvolvement in research may be seen as an empowering intervention because patients felt it contributed to recovery.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.