ArticleBMC psychology2019
A Sociodemographic variables questionnaire (Q-SV) for research on family caregivers of children with chronic disease.
Article in BMC psychology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
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26 citing papers in PubMed, 63 citations in OpenAlex.
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- The role of mental health nursing in pediatric hematology/oncology - Part 3: Evaluating feasibility, acceptability, and appreciation.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
- Positive Mental Health Questionnaire (PMHQ) for Healthcare Workers: A Psychometric Evaluation.Healthcare (Basel, Switzerland) · 2023Article
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- Positive Mental Health Scale (PMHS) in Parents of Children with Cancer: A Psychometric Evaluation Using Item Response Theory.Cancers · 2023Article
- Psychosocial Factors Associated with Self-Management in Patients with Diabetes.Healthcare (Basel, Switzerland) · 2023Article
- The impact of caregiving for children with chronic conditions on the HPA axis: A scoping review.Frontiers in neuroendocrinology · 2023Article
- A psychological experience assessment protocol of parent caregivers in paediatric palliative care.Annals of medicine · 2023Article
- Caregiver decision-making concerning involuntary treatment in dementia care at home.Nursing ethics · 2022Article
- Resilience measurement scale in family caregivers of children with cancer: Multidimensional item response theory modeling.Frontiers in psychiatry · 2022Article
- Medical outcomes study social support survey (MOS-SSS) in patients with chronic disease: A psychometric assessment.Frontiers in psychiatry · 2022Article
- Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study.International journal of environmental research and public health · 2021Article
- Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2020Article
- The Social Support Networks Scale (SSNS) for Family Caregivers of Children with Cancer: A Psychometric Evaluation.International journal of environmental research and public health · 2020Article
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Authors and funding
4 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChronic diseases in childhood can affect the physical and mental health of patients and their families. The literature on pediatric chronic diseases has found important associations between the sociodemographic variables of children and their caregivers and negative health consequences in families.
methodsIn this study, we aimed to design and validate a questionnaire on sociodemographic variables that would be useful for research on pediatric chronic diseases; and investigate the relationship between sociodemographic variables and psychosocial variables among family caregivers. First, we created a questionnaire that consists of 20 demographic, medical, and family-related items based on a literature review and expert evaluations. This questionnaire was then validated by 335 expert reviewers in the field of Social Work, who work daily with the families of patients with chronic diseases in 10 National Institutes of Health of Mexico. The validation was based on three empirical criteria created specifically for this study, and the reviewers evaluated the usefulness, relevance, and permanence of the items. In a second cross-sectional, correlational and comparative study, a total of 446 family caregivers of children with chronic diseases were interviewed, and they completed the Sociodemographic Variables Questionnaire for research on family caregivers of children with chronic sociodemographic diseases and four psychosocial measurement instruments for evaluating anxiety, depression, caregiver burden and quality of life.
resultsBased on the results of the first study, we created the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic diseases, and it includes 17 items that assess demographic, medical, and family characteristics. The results of the second study showed that the 17 sociodemographic variables obtained in the validation by expert judges are useful for measuring and evaluating the relationship between psychosocial variables in families of children with chronic diseases.
conclusionsPsychosocial and sociodemographic factors are relevant for the development of research processes for families that care for children with chronic diseases.
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