Evidence map›Paper›PMID 31855097›Full record

ArticleThe Journal of urology2020

Women's Experience with Stress Urinary Incontinence: Insights from Social Media Analytics.

Gabriela Gonzalez, Kristina Vaculik, Carine Khalil, Yuliya Zektser, Corey Arnold, Christopher V Almario, Brennan M R Spiegel, Jennifer T Anger

Registry-linked trialOpen access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Journal of urology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05858125 (Social Media Navigation Aid Kits for Urinary Incontinence), which is not on this map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
3.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05858125 nacompletednot on this mapstarted 2023, after this paper: background citation

Social Media Navigation Aid Kits for Urinary Incontinence

TypeinterventionalSponsorUniversity of New MexicoRan2023 to 2024Enrolled75ConditionsUrinary Incontinence, Stress Incontinence, Female, Urge IncontinenceArmsSocial Media Navigation Aid Kit
3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
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  12. Patients' perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
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  14. Observational
  15. Transferring Healthcare Professional's Digital Competencies to the Workplace and Patients: A Pilot Study.International journal of environmental research and public health · 2022
    Article
  16. Article
  17. Estimating Patient Empowerment and Nurses' Use of Digital Strategies: eSurvey Study.International journal of environmental research and public health · 2021
    Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 1 country.

Gabriela GonzalezDavid Geffen School of Medicine, University of California Los Angeles, Los Angeles, California.
Kristina VaculikCedars-Sinai Center for Outcomes Research and Education, Los Angeles, California.
Carine KhalilCedars-Sinai Center for Outcomes Research and Education, Los Angeles, California.
Yuliya ZektserDavid Geffen School of Medicine, University of California Los Angeles, Los Angeles, California.
Corey ArnoldMedical Imaging Informatics, Department of Radiology, University of California Los Angeles, Los Angeles, California.
Christopher V AlmarioCedars-Sinai Center for Outcomes Research and Education, Los Angeles, California.
Brennan M R SpiegelCedars-Sinai Center for Outcomes Research and Education, Los Angeles, California.
Jennifer T AngerDepartment of Surgery, Division of Urology, Cedars-Sinai Medical Center, Los Angeles, California.
Cedars-Sinai Medical Center · USUniversity of California, Los Angeles · US

Funding

Prevention of Lower Urinary Tract Symptoms in Women: Bladder Health Scientific and Data Coordinating Center (PLUS-SDCC) (U01)U01DK106786 · NIDDK · UNIVERSITY OF MINNESOTA · PI HARLOW, BERNARD L, RUDSER, KYLE · 2015 to 2019
$8.4M
Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium Scientific and Data Coordinating CenterU24DK106786 · NIDDK · UNIVERSITY OF MINNESOTA · PI MCGWIN, GERALD, RUDSER, KYLE · 2020 to 2024
$7.1M
NIDDK NIH HHS U01 DK106786NIDDK NIH HHS U24 DK106786
6 · The paper itself

Abstract

purposeWe conducted a large-scale digital ethnographic analysis of anonymous online posts to capture the complete patient experience, knowledge and perceptions among women with stress urinary incontinence. MATERIALS AND

methodsOnline posts were identified through data mining. Overall, 200 randomized posts were analyzed using grounded theory qualitative methods. To ensure full thematic discovery we also applied a Latent Dirichlet Allocation probabilistic topic modeling approach to the entire data set of identified posts. Latent Dirichlet Allocation topics are represented as a distribution of words, similar to a word cloud, which were manually reviewed to identify themes.

resultsA total of 985 online posts by 762 unique users were extracted from 98 websites. There was significant overlap between the grounded theory and Latent Dirichlet Allocation identified themes. Our analysis suggests that these online communities help women manage the quality of life impact of their stress urinary incontinence, navigate specialty care and reach a decision regarding surgical vs nonsurgical management. Additionally, we identified risk factors, prevention strategies and treatment recommendations discussed online.

conclusionsFindings demonstrated patient values that may influence decision making when seeking care for stress urinary incontinence and choosing a treatment. Social media interactions provide insight into patient behaviors that are important in order to improve patient centered care and decision making.

Indexed as

Decision MakingQuality of LifeSocial MediaAdultFemaleHumansIncidencePatient Acceptance of Health CareUnited StatesUrinary Incontinence, Stressfemale urogenital diseasesgrounded theoryhealth services researchstressurinary incontinence

Identifiers

PMID31855097
PMCPMC9354536
OpenAlexW2995168862

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.