ArticleThe American journal of hospice & palliative care2020
Prognostic Awareness, Disease and Palliative Understanding Among Caregivers of Patients With Dementia.
Article in The American journal of hospice & palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04912245 (A Telehealth Advance Care Planning Intervention in Those With Mild Cognitive Impairment or Unrecognized Dementia), which is not on this map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Telehealth Advance Care Planning Intervention in Those With Mild Cognitive Impairment or Unrecognized Dementia (Tele Voice)
Who cites it
20 citing papers in PubMed.
- Efficacy of a Telephone-Intervention on Caregiving Burden and Mental Health among Family Caregivers of Persons with Dementia in Malaysia: A Randomized Controlled Trial.International journal of environmental research and public health · 2024Trial
- Family Caregivers' Understanding, Expectations, and Emotional Responses During Transition to a Palliative Care Unit: A Qualitative Study.Nursing open · 2026Article
- Awareness and misconceptions of palliative care among paid, unpaid, and non-caregivers in the U.S.BMC palliative care · 2026Article
- "Triggering the palliative intent"?: A qualitative implementation evaluation of a prognostication model for advanced dementia (PRO-MADE) in a geriatric tertiary care setting for the integration of early palliative care.BMC palliative care · 2026Article
- Patient- and Caregiver-Identified Goals for Advance Care Planning in Patients With Dementia or Cognitive Impairment.Dementia (London, England) · 2026Article
- Redefining Frailty: Planning Care Through the Frailty Trajectory Model.Journal of the American Geriatrics Society · 2026Article
- Free-Text Responses in a Nationally Representative Experimental Survey about End-of-Life Care Choices: ChatGPT-4o-Assisted Qualitative Analytical Study.JMIR aging · 2025Article
- Knowledge, attitudes, and representations of caregivers of individuals with major neurocognitive disorders regarding palliative and end-of-life care: a narrative literature review.BMC palliative care · 2025Review
- Prognostic awareness in family caregivers of patients with terminal illness: a scoping review.BMJ open · 2025Article
- Care Decisions in the Hospital: Challenges for Family Members of Hospitalized Persons With Dementia.Journal of pain and symptom management · 2025Article
- End-of-life dementia care: a qualitative study of the experiences and perceptions of minority ethnic and economically disadvantaged groups.Age and ageing · 2025Article
- Supporting Family Caregivers of Nursing Home Residents with Dementia in Their Last Week of Life: A Survey Among Bereaved Family Caregivers.Palliative medicine reports · 2025Article
- Developing a question prompt list for family caregivers concerning the progression and palliative care needs of nursing home residents living with dementia.PEC innovation · 2023Article
- Palliative and End-of-Life Care for People Living with Motor Neurone Disease: Ongoing Challenges and Necessity for Shifting Directions.Brain sciences · 2023Article
- Dementia Care in the Last Year of Life: Experiences in a Community Practice and in Skilled Nursing Facilities.Journal of palliative care · 2023Article
- CELPI: trial protocol for a randomised controlled trial of a Carer End of Life Planning Intervention in people dying with dementia.BMC geriatrics · 2022Article
- Guidance for family about comfort care in dementia: a comparison of an educational booklet adopted in six jurisdictions over a 15 year timespan.BMC palliative care · 2022Article
- "Captive by the Uncertainty"-Experiences with Anticipatory Guidance for People Living with Dementia and Their Caregivers at a Specialty Dementia Clinic.Journal of Alzheimer's disease : JAD · 2022Article
- Physicians' perceived barriers and proposed solutions for high-quality palliative care in dementia in the Netherlands: Qualitative analysis of survey data.The journal of nursing home research sciences · 2021Article
- Lay Caregivers' Experiences With Caring for Persons With Dementia: A Phenomenological Study.Journal of gerontological nursing · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
backgroundPersons with dementia (PwD) often have significant cognitive deficits and functional limitations, requiring substantial caregiver assistance. Given the high symptom burden and terminal nature of dementia, good prognostic awareness and integration of palliative care (PC) is needed.
objectiveTo evaluate prognostic awareness, disease, and PC understanding among caregivers of PwD and to assess for improvements in routine care.
designA cross-sectional study of 2 cohorts at a single-academic medical center. Surveys were mailed to 200 caregivers of PwD in 2012 (cohort 1). Surveys were sent to new subset of caregivers of PwD (n = 80) in 2018 (cohort 2) to assess trends over time.
resultsA total of 154 of caregivers completed the survey (response rate 55%). Compared to 2012, a higher proportion of caregivers in 2018 reported having conversations about prognosis with PwD's physicians (25% in 2012 vs 45% in 2018;
conclusionsPrognostic discussions between caregivers of PwD and the PwD's physicians may be occurring more often; however, a high percentage of caregivers report a poor understanding about the terminal nature of dementia and the role of PC.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.