ArticleThe British journal of general practice : the journal of the Royal College of General Practitioners2020
Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care.
Article in The British journal of general practice : the journal of the Royal College of General Practitioners, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 42 citations in OpenAlex.
- Equitable inclusion of patients with cancer on the palliative care register: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- Co-designing Community Out-of-hours Palliative Care Services: A systematic literature search and review.Palliative medicine · 2023Pooled it
- Use of Health and Welfare Technology in Palliative Care: State-of-the-Art Review.Journal of medical Internet research · 2026Review
- Communication during out-of-hours primary care contacts for people with a terminal illness: a scoping review.BMJ open · 2026Article
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- Developments in public health paramedicine: exploring the professional practice of ambulance clinicians in palliative and end-of-life care in a remote and rural setting.British paramedic journal · 2025Article
- Optimising digital advance care planning implementation in palliative and end-of-life care: a multi-phase mixed-methods national research programme and recommendations.BMC medicine · 2025Article
- Primary palliative care: Onwards and upwards!Palliative medicine · 2024Article
- Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study.Journal of medical Internet research · 2024Article
- Factors influencing adult carer support planning for unpaid caregiving at the end of life in Scotland: Qualitative insights from triangulated interviews and focus groups.Health & social care in the community · 2022Article
- Healthcare practices that increase the quality of care in cancer trajectories from a general practice perspective: a scoping review.Scandinavian journal of primary health care · 2022Article
- Characteristics and Service Utilization by Complex Chronic and Advanced Chronic Patients in Catalonia: A Retrospective Seven-Year Cohort-Based Study of an Implemented Chronic Care Program.International journal of environmental research and public health · 2021Article
- Palliative care is increasing, but curative care is growing even faster in the last months of life.The British journal of general practice : the journal of the Royal College of General Practitioners · 2021Article
- Palliative care research promotion in policy and practice: a knowledge exchange process.BMJ supportive & palliative care · 2021Article
- Engaging family caregivers and health system partners in exploring how multi-level contexts in primary care practices affect case management functions and outcomes of patients and family caregivers at end of life: a realist synthesis.BMC palliative care · 2021Article
- Article
- Unscheduled and out-of-hours care for people in their last year of life: a retrospective cohort analysis of national datasets.BMJ open · 2020Article
- Article
- Article
- Impact of advance care planning on dying in hospital: Evidence from urgent care records.PloS one · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundElectronic care coordination systems, known as the Key Information Summary (KIS) in Scotland, enable the creation of shared electronic records available across healthcare settings. A KIS provides clinicians with essential information to guide decision making for people likely to need emergency or out-of-hours care.
aimTo estimate the proportion of people with an advanced progressive illness with a KIS by the time of death, to examine when planning information is documented, and suggest improvements for electronic care coordination systems. DESIGN AND
settingThis was a mixed-methods study involving 18 diverse general practices in Scotland.
methodRetrospective review of medical records of patients who died in 2017, and semi-structured interviews with healthcare professionals were conducted.
resultsData on 1304 decedents were collected. Of those with an advanced progressive illness (79%,
conclusionIn Scotland, most people with an advanced progressive illness have an electronic care coordination record by the time of death. This is an achievement. To improve further, better informal carer information, regular updating, and a focus on generating a KIS for people with organ failure is warranted.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.