ArticleBMC psychiatry2019
In transition with ADHD: the role of information, in facilitating or impeding young people's transition into adult services.
Article in BMC psychiatry, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- European Society of Child and Adolescent Psychiatry (ESCAP) practical guidance for clinicians and mental health services regarding child to adult mental health service transitions and managed discharge at the service boundary.European child & adolescent psychiatry · 2026Guideline
- Practitioner Review: It's time to bridge the gap - understanding the unmet needs of consumers with attention-deficit/hyperactivity disorder - a systematic review and recommendations.Journal of child psychology and psychiatry, and allied disciplines · 2023Pooled it
- Article
- "It has tentacles into every single aspect of me" a qualitative evidence synthesis of the lived experiences and perceptions of ADHD youth.European child & adolescent psychiatry · 2026Review
- [ADHS in transition: how can continuity in treatment succeed?]Der Nervenarzt · 2026Review
- Co-development of a digital animated video on attention deficit hyperactivity disorder with children and parents/carers.JCPP advances · 2026Article
- The Nottinghamshire Neurodiversity Network: building a multidisciplinary team of experts to improve pathways to care.Frontiers in health services · 2026Article
- Adult ADHD diagnostic pathways in the United Kingdom: a structured review and policy case for a national commissioning and quality framework for England.Frontiers in psychiatry · 2026Review
- Improving healthcare information for young people with ADHD in general practice: a qualitative study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
- "A one-stop shop": Real-world use and app-users' experiences of a psychoeducational smartphone app for adults with ADHD.Internet interventions · 2025Article
- Struggling to be heard: A scoping review of user participation in ADHD mental healthcare for children and adolescents.Scandinavian journal of child and adolescent psychiatry and psychology · 2025Review
- Primary care provision for young people with ADHD: a multi-perspective qualitative study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- Predictors of transitioning to adult mental health services and associated costs: a cross-country comparison.BMJ mental health · 2023Article
- Article
- Why young people stop taking their attention deficit hyperactivity disorder medication: A thematic analysis of interviews with young people.Child: care, health and development · 2022Article
- Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs).BMC health services research · 2022Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundMany national and regional clinical guidelines emphasise the need for good communication of information to young people and their parent/carers about what to expect during transition into adult services. Recent research indicates only a minority of young people in need of transition for Attention Deficit Hyperactivity Disorder (ADHD) experience continuity of care into adulthood, with additional concerns about quality of transition. This qualitative study explored the role that information plays in experiences of transition from the perspectives of parent/carers and young people.
methodsParticipants were recruited from 10 National Health Service Trusts, located across England, with varying service configurations. Ninety two qualitative interviews were conducted: 64 with young people with ADHD at different stages relative to transition, and 28 with parent/carers. Thematic analysis of data was completed using the Framework Method.
resultsInterviewees reported a range of experiences; however reliance on parent/carers to gather and translate key information, and negative experiences associated with poor communication of information, were universal. Three themes emerged: Navigating information with help from parents; Information on ADHD into adulthood; Information about the transition process. The first revealed the essential role of parent in the translation and application of information, the other two explored distinct types of information necessary for a smooth transition. Interviewees made recommendations for clinical practice similar to UK (United Kingdom) National Institute for Health and Care Excellence (NICE) guidelines, with an additional emphasis on providing nuanced information on ADHD as a potentially long term condition. It was important to interviewees that General Practitioners had a basic understanding of adult ADHD and also had access to information about service provision.
conclusionsOur findings illustrate that the availability and communication of information to young people and their parent/carers is an essential component of the transition process between child and adult ADHD services. How and when it is provided may support or impede transition. This study constitutes a substantial contribution to the evidence base, drawing on interviews from a range of participants across England and from Trusts offering different types of services.
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