SynthesisJournal of pediatric psychology2020
Patient-Reported Outcomes for Pediatric Adherence and Self-Management: A Systematic Review.
Synthesis in Journal of pediatric psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Systematic review and meta-analysis of psychological interventions for depression symptoms in young people with long-term physical health conditions.Journal of pediatric psychology · 2025Pooled it
- Systematic review and meta-analysis of interventions to promote medication adherence among children, adolescents, and young adults with medical conditions.Journal of pediatric psychology · 2025Pooled it
- Patient reported outcomes in oncology: changing perspectives-a systematic review.Health and quality of life outcomes · 2022Pooled it
- Patient-Reported Outcome Benefits for Children with Advanced Cancer and Parents: A Qualitative Study.Journal of pain and symptom management · 2023Trial
- Key predictors of the need for a family-focused pediatric epilepsy adherence intervention.Epilepsia · 2022Trial
- Multimodal Assessment of Medication Adherence Among Youth With Migraine: An Ancillary Study of the CHAMP Trial.Journal of pediatric psychology · 2022Trial
- Self-management and treatment adherence in pediatric irritable bowel syndrome (IBS): A longitudinal study.Journal of psychosomatic research · 2025Article
- Economic burden of hospitalization for Chinese children with chronic kidney disease: a comparison between patients with and without infection.Frontiers in pediatrics · 2025Article
- The Effects of Race, Ethnicity, and Gender on Predictors of Asthma Medication Adherence among Early High School Students.Children's health care : journal of the Association for the Care of Children's Health · 2024Article
- Ethical considerations in using sensors to remotely assess pediatric health behaviors.The American psychologist · 2024Article
- Grit and Health-Related Quality of Life in Adolescents and Young Adults with Cancer: Mediating Role of Health Self-Efficacy and Treatment Adherence.Journal of pediatric psychology · 2023Article
- The Barriers Assessment Tool-A Patient-Centered Measure of Adherence Barriers in Pediatric Kidney Transplantation.Children (Basel, Switzerland) · 2023Article
- A Cross Sectional Study to Identify Traumatic Stress, Medical Phobia and Non-Adherence to Medical Care among Very Young Pediatric Patients.International journal of environmental research and public health · 2023Article
- Self-reported medication adherence instruments and their applicability in low-middle income countries: a scoping review.Frontiers in public health · 2023Article
- Article
- Application of Patient-Reported Outcome Measurements in Clinical Trials in China.JAMA network open · 2022Article
- Adherence to Multiple Treatment Recommendations in Adolescents and Young Adults with Cancer: A Mixed Methods, Multi-Informant Investigation.Journal of adolescent and young adult oncology · 2020Article
- The Impact of COVID-19 on Pediatric Adherence and Self-Management.Journal of pediatric psychology · 2020Review
- A Micro-longitudinal Approach to Measuring Medication Adherence in Pediatric Inflammatory Bowel Diseases.Journal of pediatric gastroenterology and nutrition · 2020Article
- Using Person-Reported Outcomes (PROs) to Motivate Young People with Diabetes.Current diabetes reports · 2020Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
objectiveTreatment adherence is approximately 50% across pediatric conditions. Patient-reported outcomes (PROs) are the most common method of measuring adherence and self-management across research and clinical contexts. The aim of this systematic review is to evaluate adherence and self-management PROs, including measures of adherence behaviors, adherence barriers, disease management skills, and treatment responsibility.
methodsFollowing PRISMA guidelines for systematic reviews, literature searches were performed. Measures meeting inclusion/exclusion criteria were evaluated using Hunsley and Mash's (2018) criteria for evidence-based assessment across several domains (e.g., internal consistency, interrater reliability, test-retest reliability, content validity, construct validity, validity generalization, treatment sensitivity, and clinical utility). Rating categories were adapted for the present study to include the original categories of adequate, good, and excellent, as well as an additional category of below adequate.
resultsAfter screening 172 articles, 50 PROs across a variety of pediatric conditions were reviewed and evaluated. Most measures demonstrated at least adequate content validity (n = 44), internal consistency (n = 34), and validity generalization (n = 45). Findings were mixed regarding interrater reliability, test-retest reliability, and treatment sensitivity. Less than half of the measures (n = 22) exhibited adequate, good, or excellent construct validity.
conclusionsAlthough use of adherence and self-management PROs is widespread across several pediatric conditions, few PROs achieved good or excellent ratings based on rigorous psychometric standards. Validation and replication studies with larger, more diverse samples are needed. Future research should consider the use of emerging technologies to enhance the feasibility of broad implementation.
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