ArticleBMC palliative care2019
An examination of home-based end-of-life care for cancer patients: a qualitative study.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Primary palliative care in low- and middle-income countries: A systematic review and thematic synthesis of the evidence for models and outcomes.Palliative medicine · 2024Pooled it
- Contexts, mechanisms and outcomes of home-based palliative care implementation in low- and middle-income countries: A realist review.Palliative care and social practice · 2026Review
- Important Elements of Quality Home End-of-Life Care in China.JAMA network open · 2025Article
- Changes in end-of-life care models among Chinese older adults, 1998-2018: an age-period-cohort analysis.BMC geriatrics · 2025Article
- Hospice preference of the family decision-makers for cancer patients in China: an exploratory study.BMC palliative care · 2022Article
- End of life decisions and preference of place of death among geriatric and chronic disease patients: A scoping review.International journal of nursing studies advances · 2022Article
- The experience of providing end-of-life care at home: The emotional experiences of young family physicians.Journal of general and family medicine · 2022Article
- The decision for hospice care in patients with terminal illness in Shanghai: A mixed-method study.International journal of nursing sciences · 2022Article
- Exploring the needs and experiences of palliative home care from the perspectives of patients with advanced cancer in China: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundOnly a small number of patients have utilized the home-based end-of-life care service in Shanghai that has been offered since 2012. This study explores how home-based end-of-life care is delivered in community health service centers in Shanghai and examines the difficulties in the delivery of the care.
methodsThis was a qualitative study in which data were collected from interviews and analyzed using qualitative content analysis. Nineteen health care providers with experience in delivering home-based end-of-life care in 12 community health service centers were recruited. The interviews were conducted between August 2018 and February 2019.
resultsFour themes emerged from the interviews: (i) Patients under home-based end-of-life care: Patients receiving the care were cancer patients with less than 1 year of life expectancy. The criteria for patients were broad. (ii) Service structure: The service was delivered regularly by the physicians and nurses using the approaches of home visits and/or telephone follow-ups. (iii) Service process: The service consisted of multiple components, including monitoring the patient's condition, managing the patient's symptoms, giving daily care instructions, performing nursing procedures, and giving psychological support. However, most of the care focused on monitoring the patients and managing their physical discomfort. (iv) Difficulties in delivering care: Being unable to provide the service and feeling powerless when facing psycho-spiritual problems were the two major difficulties. Three factors contributed to the suspension of the service: The gap between the service and the needs of the patients, a lack of patients, and low work motivation. The demand that the truth be concealed from the families and their attitude of avoiding talking about death were the key factors of the failure of psycho-spiritual care.
conclusionsSeveral issues should be addressed before the service can be further developed, including fully understanding the needs and preferences of local patients and their families, securing more financial support and a better supply of drugs, delivering better training for staff, and ensuring greater rewards for individuals and institutions providing the service.
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