ArticleOsteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA2020
Patient engagement in clinical guidelines development: input from > 1000 members of the Canadian Osteoporosis Patient Network.
Article in Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 5 of them syntheses that pooled it.
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Who cites it
18 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Patient research partner involvement in rheumatology research: a systematic literature review informing the 2023 updated EULAR recommendations for the involvement of patient research partners.Annals of the rheumatic diseases · 2024Pooled it
- Clinical practice guideline for management of osteoporosis and fracture prevention in Canada: 2023 update.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2023Guideline
- Bracing and taping interventions for individuals with vertebral fragility fractures: a systematic review of randomized controlled trials with GRADE assessment.Archives of osteoporosis · 2023Pooled it
- Exercise for improving age-related hyperkyphosis: a systematic review and meta-analysis with GRADE assessment.Archives of osteoporosis · 2021Pooled it
- The Effect of Impact Exercise (Alone or Multicomponent Intervention) on Health-Related Outcomes in Individuals at Risk of Fractures: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.Sports medicine (Auckland, N.Z.) · 2021Pooled it
- Physical fitness in older women with osteoporosis and vertebral fracture after a resistance and balance exercise programme: 3-month post-intervention follow-up of a randomised controlled trial.BMC musculoskeletal disorders · 2020Trial
- Quality appraisal of clinical guidelines for newborns in China: a systematic review protocol.BMJ open · 2026Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- Virtual Intervention for Vertebral frActures (VIVA): protocol for a feasibility study of a multicentre randomized controlled trial.Pilot and feasibility studies · 2025Article
- Article
- Patient Perception on Osteoporosis in Korean Female Patients with Osteoporosis.Journal of bone metabolism · 2024Article
- Article
- [Participation of Patients in the Development of Clinical Guidelines: A Selective Country Comparison in a Narrative Review].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2023Review
- Finding the Optimal Resistance Training Intensity for Your Bones: Protocol for a Randomized Controlled Trial.Physical therapy · 2023Article
- Scoping review of methods for engaging long-term care residents living with dementia in research and guideline development.BMJ open · 2023Article
- Patient and public involvement in the development of clinical practice guidelines: a scoping review.BMJ open · 2022Article
- Abnormal Variations of the Key Genes in Osteoporotic Fractures.Emergency medicine international · 2022Article
- Protocol for a scoping review on the methods for engaging long-term care residents with dementia in research and guideline development.BMJ open · 2021Article
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13 authors.
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Abstract
Patient engagement in clinical guidelines development is essential. The results of a self-administered online survey identified themes important to people living with osteoporosis and will inform the development of Osteoporosis Canada clinical guidelines recommendations.
introductionPatient engagement is essential in the development of high-quality and relevant guidelines for osteoporosis management. Osteoporosis Canada (OC) is updating its national clinical practice guidelines in collaboration with people living with osteoporosis in the process.
methodsUsing electronic mail, we contacted 6937 members of the Canadian Osteoporosis Patient Network (COPN) to provide input on the selection of relevant content, outcomes, and research questions via a self-administered online survey. Close-ended questions were analyzed using descriptive statistics, and conventional content analysis was conducted for open-ended questions.
resultsA total of 1108 individuals completed the survey (97% women, 86% stated they lived with osteoporosis). Most participants considered it critical to have recommendations on physical activity and exercise (74%), fall prevention (69%), nutrition (68%), and initial bone mineral density testing (67%). In addition to preventing fractures, over 75% of respondents stated that consideration of preserving quality of life and ability to perform daily activities, preventing admission to long-term care and fracture-related death, and avoiding serious harms from medications were essential outcomes to consider in evaluating the evidence. In terms of selection of research questions, seven themes emerged from the content analysis including pharmacotherapy, screening and monitoring, diet and supplements, education, exercise, alternative therapies, and pain management.
conclusionsPatients emphasized that autonomy, mobility, and quality of life are highly valued outcomes and must be integral to practice guideline development. As expected, guidance on pharmacotherapy, screening and monitoring, and fracture prevention were priorities identified to be included in osteoporosis management guidelines.
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