Evidence map›Paper›PMID 31838131›Full record

ArticleJournal of pain and symptom management2020

Defining the Boundaries of Palliative Care in Pediatric Oncology.

Andrea Cuviello, Jessica C Raisanen, Pamela K Donohue, Lori Wiener, Renee D Boss

Abstract read
In one paragraph

Article in Journal of pain and symptom management, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed.

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  16. Initiating Palliative Care Referrals in Pediatric Oncology.Journal of pain and symptom management · 2021
    Article
  17. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Andrea CuvielloJohns Hopkins School of Medicine, Baltimore, Maryland, USA; National Institutes of Health, Bethesda, Maryland, USA. Electronic address: ajcuviello@gmail.com.
Jessica C RaisanenJohns Hopkins Berman Institute of Bioethics, Baltimore, Maryland, USA.
Pamela K DonohueJohns Hopkins School of Medicine, Baltimore, Maryland, USA.
Lori WienerNational Institutes of Health, Bethesda, Maryland, USA.
Renee D BossJohns Hopkins School of Medicine, Baltimore, Maryland, USA; Johns Hopkins Berman Institute of Bioethics, Baltimore, Maryland, USA.

Funding

Pediatric Oncology Branch Behvioral Science CoreZIDBC011517 · NCI · DIVISION OF BASIC SCIENCES - NCI · PI GLOD, JOHN · 2013 to 2025
$15.6M
Intramural NIH HHS ZID BC011517
6 · The paper itself

Abstract

contextAlthough palliative care (PC) continues to be integrated into pediatric oncological care, only a minority of patients with cancer receive a formal PC consult.

objectivesWe sought to describe oncologists' current understanding of PC and how primary PC is provided for children with cancer.

methodsThis mixed-methods study explored pediatric oncology providers' definitions of PC and self-reported PC practices through semistructured audiotaped interviews. Conventional content analysis was applied to interview transcripts.

resultsSeventy-seven participants with diverse training backgrounds (30 attending physicians, 21 nurses, 18 fellows, five nurse practitioners, and two child life specialists) completed an interview. Approximately 75% provided a modern definition of PC (e.g., not limited to end-of-life care); all participants acknowledged primary PC skills as part of their daily clinical activities. However, participants expressed wide variation in the comfort and time spent performing primary PC tasks (i.e., symptom management, addressing mental health and psychosocial needs) and over half reported that patients' PC needs are not adequately met. In addition, some reported confusion about the benefits of PC consultation, despite acknowledging that PC needs to be better integrated into the care of pediatric oncology patients.

conclusionOur findings demonstrate that although most pediatric oncologists accept a modern definition of PC in theory, how to integrate PC into pediatric oncology practice is less understood. Formalized training and standardization of practice surrounding identification of PC needs in patients who may require secondary or tertiary PC services may help to overcome current barriers for PC integration in pediatric oncology.

Indexed as

Hospice and Palliative Care NursingNeoplasmsTerminal CareChildHumansMedical OncologyPalliative CarePalliative carepediatric oncologyquality of lifesymptom management

Identifiers

PMID31838131
PMCPMC8979408

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.