Evidence map›Paper›PMID 31833121›Full record

ArticleHead & neck2020

Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world.

Simon N Rogers, Alvaro Alvear, Alexandre Anesi, Emmanuel Babin, Ali Balik, Martin Batstone, Phillipp Brockmeyer, Claudia Celedon Carrasco, Chih-Yen Chien, Magdalena Chirila and 27 more

Abstract read
In one paragraph

Article in Head & neck, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Survival of osseointegrated implants in head and neck cancer patients submitted to multimodal treatment: a systematic review and meta-analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Pooled it
  2. Article
  3. Cancer care coordination determinants of depression in head and neck cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  4. Article
  5. Article
  6. Article
  7. The Patient Concerns Inventory in head and neck oncology: a structured review of its development, validation and clinical implications.European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery · 2022
    Review
  8. Construct Validity of the EuroQoL-5 Dimension and the Health Utilities Index in Head and Neck Cancer.Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery · 2022
    Article
  9. Article
  10. Mapping of head and neck cancer patient concerns inventory scores on to Euroqol-Five Dimensions-Five Levels (EQ-5D-5L) health utility scores.The European journal of health economics : HEPAC : health economics in prevention and care · 2022
    Article
  11. Article
  12. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

37 authors.

Simon N RogersEvidence-Based Practice Research Centre (EPRC), Faculty of Health and Social Care, Edge Hill University, Liverpool, UK.ORCID 0000-0002-5989-6142
Alvaro AlvearInstituto Nacional del Cancer, Santiago, Chile.
Alexandre AnesiCranio-Maxillo-Facial Surgery Unit, University Hospital of Modena, Modena, Italy.ORCID 0000-0002-5281-6840
Emmanuel BabinHospital Côte de Nacre, ANTICIPE, University Caen-Normandy.
Ali BalikDepartment of Prosthodontics, Faculty of Dentistry, Istanbul University, Istanbul, Turkey.
Martin BatstoneRoyal Brisbane and Women's Hospital, University of Queensland, Queensland, Australia.
Phillipp BrockmeyerDepartment of Oral and Maxillofacial Surgery, University Medical Centre, Goettingen, Germany.ORCID 0000-0003-3694-2828
Claudia Celedon CarrascoInstituto Nacional del Cancer, Santiago, Chile.
Chih-Yen ChienDepartment of Otolaryngology, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan.ORCID 0000-0002-6690-6038
Magdalena ChirilaDepartment of Otorhinolaryngology, Iuliu Hatieganu University of Medicine and Pharmacy Cluj-Napoca, Romania; Emergency County Hospital, Cluj-Napoca, Romania.ORCID 0000-0002-3771-6614
Kanchan P DholamDepartment of Dental and Prosthetic Surgery, Tata Memorial Hospital, Homi Bhabha National Institute (HBNI), Mumbai, India.
Jennifer G DossDepartment of Community Oral Health & Clinical Prevention, University Malaya, Kuala Lumpur, Malaysia.
Caterina FiniziaDepartment of Otorhinolaryngology, Head and Neck Surgery, Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Sahlgrenska University Hospital, Gothenburg, Sweden.
Wan M Nabilah GhaniOral Cancer Research & Coordinating Center, University of Malaya, Kuala Lumpur, Malaysia.
Sandeep V GuravDepartment of Dental and Prosthetic Surgery, Tata Memorial Hospital, Homi Bhabha National Institute (HBNI), Mumbai, India.ORCID 0000-0003-4913-7270
Kathreena KadirDepartment of Oro-Maxillofacial Surgical & Medical Sciences, University Malaya, Kuala Lumpur, Malaysia.
Mateusz KolatorDepartment of Otolaryngology, Head and Neck Surgery, Wroclaw Medical University, Wrocław, Poland.ORCID 0000-0002-7226-5839
Roberto LimaBrazilian National Health Institution, Rio de Janeiro, Brazil.
Yu-Tsai LinDepartment of Otolaryngology, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan.
Simon NhongoRoyal Brisbane and Women's Hospital, University of Queensland, Queensland, Australia.
Meltem Ozdemir-KaratasDepartment of Prosthodontics, Faculty of Dentistry, Istanbul University, Istanbul, Turkey.
Kadriye PekerDivision of Basic Sciences, Department of Dental Public Health, Faculty of Dentistry, Istanbul University, Istanbul, Turkey.ORCID 0000-0003-1436-6508
Zoran PesicDepartment of Maxillofacial Surgery, Clinic of Dentistry, Medicine Faculty, University of Nis, Nis, Serbia.
Pierre RansyOtorhinolaryngology-Head and Neck Surgery Department, C.H.U. Liege, Liège, Belgium.
Izabella SantosBrazilian National Health Institution, Rio de Janeiro, Brazil.ORCID 0000-0002-6426-2419
Henning SchliephakeDepartment of Oral and Maxillofacial Surgery, University Medical Centre, Goettingen, Germany.
Ketan ShahMorriston Hospital, Swansea, UK.
Fernanda SouzaBrazilian National Health Institution, Rio de Janeiro, Brazil.
Geethu SunilHead and Neck Surgery and Oncology, Amrita Institute of Medical Sciences, Amrita Vishwa Vidyapeetham, Kochi, Kerala, India.
Krishnakumar ThankappanHead and Neck Surgery and Oncology, Amrita Institute of Medical Sciences, Amrita Vishwa Vidyapeetham, Kochi, Kerala, India.ORCID 0000-0001-5999-0422
Ylva Tiblom EhrssonDepartment of Surgical Sciences, Section of Otorhinolaryngology and Head & Neck Surgery, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-7435-167X
Cristina TipleDepartment of Otorhinolaryngology, Iuliu Hatieganu University of Medicine and Pharmacy Cluj-Napoca, Romania; Emergency County Hospital, Cluj-Napoca, Romania.
Lisa TuomiDepartment of Otorhinolaryngology, Head and Neck Surgery, Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Sahlgrenska University Hospital, Gothenburg, Sweden.
Sara ValeriniDepartment of Otolaryngology, University Hospital of Modena, Modena, Italy.
Pablo Vasquez LaraInstituto Nacional del Cancer, Santiago, Chile.
Tomasz ZatońskiDepartment of Otolaryngology, Head and Neck Surgery, Wroclaw Medical University, Wrocław, Poland.ORCID 0000-0003-3043-4806
Derek LoweEvidence-Based Practice Research Centre (EPRC), Faculty of Health, Edge Hill University, Ormskirk, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL).

methodsNineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias.

resultsThere were 2136 patients with a median total number of PCI items selected of 5 (2-10). "Fear of the cancer returning" (39%) and "dry mouth" (37%) were most common. Twenty-five percent (524) reported less than good QOL.

conclusionThere was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL.

Indexed as

Head and Neck NeoplasmsQuality of LifeHumansSurveys and Questionnaireshead and neck cancerpatient concerns inventorypatient prompt listquality of life

Identifiers

PMID31833121
PMCPMC7079080

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.