ArticleInternational urogynecology journal2020
I leaked, then I Reddit: experiences and insight shared on urinary incontinence by Reddit users.
Article in International urogynecology journal, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
19 citing papers in PubMed, 46 citations in OpenAlex.
- Autistic Burnout on Reddit: A Sisyphean Struggle with Daily Tasks.Journal of autism and developmental disorders · 2026Article
- Associations of urinary incontinence, absorbent product use, and confidence gained from absorbent product use with perceived ageism in later adulthood.The Gerontologist · 2026Article
- Social Media Perspectives on Congenital Heart Disease: Integrating Thematic and Sentiment Analysis to Characterize the Digital Health Footprint.Pediatric cardiology · 2026Article
- Exploring online discussions in men with testicular cancer: a qualitative and sentiment analysis of Reddit posts.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Social Media in Urologic Healthcare: Transforming Treatment, Management, and Online Medical Communication.International neurourology journal · 2025Article
- Reddit users' perspectives on radiofrequency ablation: A data analysis.Interventional pain medicine · 2025Article
- Understanding Health-Related Discussions on Reddit: Development of a Topic Assignment Method and Exploratory Analysis.JMIR formative research · 2025Article
- Analyzing Smoking Challenges in Bladder Cancer Patients From an Online Forum: A Contemporary Qualitative Study of Peer Support and Cessation Motivators.Tobacco use insights · 2025Article
- Quality of life of women with urinary incontinence in the postpartum period: an integrative literature review.Frontiers in global women's health · 2025Review
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- Information Sharing in Neurosurgery Topics Among Pediatric Patients and Loved Ones Within the Reddit Community.Cureus · 2024Article
- Thoughts and Experiences of Behçet Disease From Participants on a Reddit Subforum: Qualitative Online Community Analysis.JMIR formative research · 2023Article
- Comparing Literature- and Subreddit-Derived Laboratory Values in Polycystic Ovary Syndrome (PCOS): Validation of Clinical Data Posted on PCOS Reddit Forums.JMIR formative research · 2023Article
- Public Attitudes Towards Vaccine Passports in Alberta During the "Pandemic of the Unvaccinated": A Qualitative Analysis of Reddit Posts.International journal of public health · 2023Article
- Female Lower Urinary Tract Symptom Prevention and Treatment Strategies on Social Media: Mixed Correlation With Evidence.Urology · 2021Article
- Pelvic organ prolapse and uterine preservation: a survey of female gynecologists (POP-UP survey).BMC women's health · 2020Article
- Identifying New/Emerging Psychoactive Substances at the Time of COVID-19; A Web-Based Approach.Frontiers in psychiatry · 2020Article
- What are Ophthalmology Patients Asking Online? An Analysis of the Eye Triage Subreddit.Clinical ophthalmology (Auckland, N.Z.) · 2020Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introduction and hypothesisUrinary incontinence (UI) is a highly prevalent condition, but is often not discussed owing to social stigma. Reddit is an internet platform for anonymous information sharing, expression, and discussion. We sought to qualitatively analyze people's behavioral, psychological, and illness experiences with UI expressed on Reddit to improve our understanding of patients' perceptions and ultimately the care we provide.
methodsWe used the Subreddit group "Incontinence" over 5 years and "BeyondtheBump" (postpartum forum) over 1 year as transcripts for qualitative analysis. Two independent researchers read and coded relevant threads (>100 posts and >400 comments). Charmaz's principles of grounded theory were applied. This included line-by-line coding of transcripts utilizing key phrases followed by grouping similarly coded phrases into preliminary themes. Emergent concepts were derived from these themes.
resultsA group of Reddit users with diverse UI etiologies were sampled. Qualitative analysis resulted in six preliminary themes. Users with UI were initially self-aware of their incontinence. They were interested in optimal product use. Users struggled with major life adjustments and relating to others. Nonetheless, they learned gradually to cope with their symptoms. Last, postpartum women specifically wanted additional immediate help for managing UI, often in the form of pelvic physiotherapy. Three emergent concepts were formed: the sense of isolation, acceptance over time, and self-drive to manage their UI.
conclusionsInternet forums such as Reddit may serve as a health resource for people with UI. Physicians can strive to better understand the patient perspective and their needs in order to provide optimal care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.